Questions

Shared by brigette on March 10, 2017

My daughter is 3 1/2 years old. She has ONH with a possibility of very little light perception. She also has sensory processing disorder. She has nights where she will go to sleep at 8pm and wake up at midnight or even 2am and we get up at 6 to get ready for school. By the time we are getting...

2 Answers
Shared by sarah_davies_2 on February 23, 2017

My daughter is just 3 and registered severely visually impaired. Others have started to explain to their children around my daughter that "she cannot see as well as them" etc... we need to start explaining to her about her VI and want to get this right. Does anyone have any guidance?

1 Answer
Shared by MamaBear on February 17, 2017

My completely blind son (2 1/2) is becoming more independent (YAYYYY!) and wants to do everyday activities like sighted big brother does. (Vaccum, pick up toys/laundry)...What kitchen tools/utensils do you have and use that allows your kiddo to be helpful and involved? (with supervision of...

1 Answer
Shared by anita_owsley on February 8, 2017

My daughter has ONH and is almost 7 months old. What are some things that could help her reach some developmental milestones?

1 Answer
Shared by Erin-and-Elijah on December 28, 2016

My son has septo-optic dysplasia and has no sight in both eyes. He doesn't talk very much on own (mostly repeats things or sings songs he likes) and does not walk freely (holds my hands or uses walker). Lately (about a month now), he's been extremely adverse to playing with his toys. Christmas...

1 Answer
Shared by Erin-and-Elijah on December 11, 2016

I understand the concept of "terrible two's" but I feel like this is more than that. He has no interests in toys or moving around. He just wants to listen to his music all day for hours and throws a fit when there's a commercial (on Pandora) or if the music stops. Takes sometimes 10mins to...

5 Answers
Shared by cvied@vips.org on November 9, 2016
1 Answer
Shared by Hillary Kleck on November 4, 2016

Have any groups or families hosted a movie night with audio description for families of kids who are blind/visually impaired? How did it go? What would you do differently or do again? I'd love to hear from someone with experience with this! Thanks!

1 Answer
Shared by hieronimus357 on November 4, 2016

I have been using the Building on Patterns reading curriculum and I just found out from my vision teacher that it does not go any further than 2nd grade. I really like this series as it has stories about other vision impaired kids and I feel my student really relates well to them. I've been...

1 Answer
Shared by Nfalmarri on October 27, 2016

I have a 2yr daughter that is born blind. She doesn't connect well with people. She swings and jumps and repeats words. Is that normal? She doesn't listen to me or obey orders. I don't know how to deal with her. Thanks.

1 Answer
Shared by Soliz2011 on October 15, 2016

were can i get help getting a carseat for my son? i just moved to oregon and had to start all over with nothing

1 Answer
Shared by hieronimus357 on October 14, 2016

I work with a student who is on the CADI program and they have funds available for assisted devices or technology for at the home. Is there anything specific that people find useful at home? I have come up with a watch and a braillepen. I appreciate any ideas you have. Thank you in advance!

1 Answer
Shared by hieronimus357 on September 16, 2016

We have tried adapting the classroom curriculum and it's just too difficult for my student to grasp. We keep getting told there is no braille curriculum for math. We used math builders but cannot find a complete set that covers everything. We just want to find a curriculum that helps a blind...

4 Answers
Shared by MamaBear on July 27, 2016

My family is planning on moving to a new state so my blind son can go to a school for the blind. We will also be around a better support system of family and friends, plus husband's war buddies. Better for his PTSD recovery! Just looking for advice, never made a move this big with children

2 Answers
Shared by Debra Murray on July 11, 2016

My daughter's been in school a few years now and every year we gather more papers, progress reports, notes etc. I need to keep it all in order for our IEP meetings, but it's just a mess. Is there a way to keep it all organized?

1 Answer
Shared by Anonymous on June 27, 2016

We are going in December of this year. She is totally into Harry Potter, so that will be a definite. Can I get a braille guide book before going so she can read and figure out what she wants to do?

Is her cane going to be a help or a hindrance?

Thank you.

Margaret Kidder...

3 Answers
Shared by mrvido55 on June 15, 2016
4 Answers
Shared by EsMom on June 8, 2016

Hi. Making a big move - Michigan to Southeastern Mass. Perkins admission process for my daughter with special needs is underway. Does anyone know if any school districts in this area release special needs children to private programs such as Perkins? Husbands new position will be in West...

1 Answer
Shared by Skippy on May 23, 2016

I am going on a field trip to a zoo with a blind kindergartner.... Looking to make it a wonderful experience

2 Answers
Shared by Aubri9 on May 21, 2016

My son is 4 Years old and is still not mainstreamed in general education preschool classroom. He has never had this issue until he was involved in the school district. The school says they will mainstream him when he is ready, But I feel that is a vague term, Define ready. Is ready when you say...

1 Answer
Shared by Lenee on May 3, 2016

I am a speech therapist and I work in a hospital pediatric out patient facility with a new client on my caseload. The child is extremely visually impaired and parents greatest concern is his extremely limited ability to socialize during one on one and in large group situations. Any resources...

2 Answers
Shared by Annell on March 29, 2016

My son is 12 years old. Has a unique condition consisting in a trysomi 9q monosomy 22q. He has hypotonia, autism and is non verbal. I need an electronic device like an iPad to try to get him to comunícate with us through it using diffrent apps like pecs. I believe he will improve a lot if I was...

1 Answer
Shared by Slinhares731 on February 23, 2016

She can pick herself up from a laying position without any hands but when she's on her tummy she just rolls around. I would like to improve her strength in her arms and hands, so she can lift herself up.

4 Answers
Shared by MamaBear on February 22, 2016

If you had the chance to build your dream home for your family, including your visually impaired child, what kind of choices would you make? Would you want stairs in your home, different kind of flooring...etc?

3 Answers
Shared by Anonymous on February 19, 2016

How can I communicate with my son?

2 Answers
Shared by Anonymous on February 16, 2016

also glad to hear that my child is not alone in 2010 i gave birth to my beautiful daughter with anophthelmos at that time dr said my daughter has no eye ball and it was hard news parent could ever hear.the dr at the eye clinic said that they could not help me there is nothing they could do for...

2 Answers
Shared by MamaBear on February 13, 2016

My husband and I have recently considered moving to a different state. What are some questions I need to ask both the local public schools and the states school of the blind? I want to make sure we move to a good school district that is willing and capable of teaching a fully blind student. Or...

1 Answer
Shared by Anonymous on February 12, 2016

My son is autistic and loves the ipad at school. He uses it most of the day. It's a great learning tool for him and his teacher told me about this website and that I could possibly purchase an Ipad at a discounted rate.

1 Answer
Shared by Anonymous on February 9, 2016

بانتى عمرها 11 شهر ومن حوالى 3 اشهر لاحظنا حركه بالراس بملانها فجاه لجزء اقل من ثانيه تتكرر 10 مرات فى اليوم وهناك ايام اقل بكثير
الطبيب اكد انها كهرباء فى المخ ونوبة صرعيه ولكن طلب تخطيط مخ وتحليل الدم
سؤالى تحليل الدم لابنتى فيه بعض الخلل مثل الحديد والكرات وهكزا فهل من الممكن ان...

4 Answers
Shared by monica on January 15, 2016

My baby girl was diagnosed with down syndrome and she also has bilateral microphathalmia. We don't have official eye diagnosis but I can tell thats what it is. We have retina specialist exam under anesthesia at the end of January. I need support and other parents who have been here. Any...

5 Answers
Shared by MeganG on January 13, 2016

My son recently turned six years old, and he is in a Pre-K program at a preschool for blind and visually impaired children. He has bilateral ONH with light perception. We are planning for Kindergarten, and we don't know how mainstream kindergarten classes would accommodate his needs. Does anyone...

3 Answers
Shared by mshepperd on December 9, 2015

I have a student on my caseload with septo-optic dysplasia. His classroom teacher reported to me that he is rolling around on the floor more this year (great!); however, yesterday he rolled in to another student and scratched her face severely. Should we implement some boundaries so he knows...

1 Answer
Shared by Lindie Swanepoel on November 26, 2015
4 Answers
Shared by kaitie on November 7, 2015
6 Answers