My son 6yr has 18p-22q11.2 and as a result of these two conditions has hypotonia and hypermobility and uses a fist grip rather than a pincer resulting in his ability to write being limited to around 10-15 words in an hour. he is now starting to suffer and fall so far behind in school. He also has hearing loss and is fitted with transmitters in school.
Home life is very poor. Mother is very yound and not engaged. He is attending a developmentally disabled 3 year old prek program 4 days a week. He does have some language and will spontaneously speak in short sentences. We need to teach him concepts such as left/right, up/down, front/back etc.
Hi Moms and Dads,
My son is blind due to a combination of LCA and CVI (he has a metabolic disorder, which was misdiagnosed as infant leading to a stroke at 4mo), because of this stroke we knew as he got older learning disabilities would probably manifest.
They are all nonverbal and they have different impairments.
My son is 31 and has multiple disabilities including cortical blindness. He can see colors and shapes but needs voice overs for directions. I mistakenly got him an android tablet last Christmas and none of the apps were accessible for him except for the stories read aloud.He loves to interact verbally with others, etc.
I am going to be a Consultative teacher at another campus in our county. One child has been diagnosed with autism and is also deaf. I have worked with students who had some hearing loss, but through the use of technology and a small microphone he was able to meet his goals and beyond.. I would like to have guidance on "my" transition into this class.
The advice I have received from everyone has been so helpful and comforting so I thought I would throw another question out there :) We have been discussing school alot recently..public school v.s a day student at a school for the blind. We still have about a year until she is preschool age but if we choose a school for the blind, we need to start the process of moving asap.
Our daughter consistently surprises us with her ability to manage various medical procedures and protocols, but it has been a while since we've put her through anything this intense. We have a consult with Jahrling's scheduled for next week. Our daughter has an inoperable retinal detachment in her right eye, due to Incontinentia Pigmenti.