Hi Moms and Dads,
My son is blind due to a combination of LCA and CVI (he has a metabolic disorder, which was misdiagnosed as infant leading to a stroke at 4mo), because of this stroke we knew as he got older learning disabilities would probably manifest.
They are all nonverbal and they have different impairments.
My son is 31 and has multiple disabilities including cortical blindness. He can see colors and shapes but needs voice overs for directions. I mistakenly got him an android tablet last Christmas and none of the apps were accessible for him except for the stories read aloud.He loves to interact verbally with others, etc.
I am going to be a Consultative teacher at another campus in our county. One child has been diagnosed with autism and is also deaf. I have worked with students who had some hearing loss, but through the use of technology and a small microphone he was able to meet his goals and beyond.. I would like to have guidance on "my" transition into this class.
The advice I have received from everyone has been so helpful and comforting so I thought I would throw another question out there :) We have been discussing school alot recently..public school v.s a day student at a school for the blind. We still have about a year until she is preschool age but if we choose a school for the blind, we need to start the process of moving asap.
Our daughter consistently surprises us with her ability to manage various medical procedures and protocols, but it has been a while since we've put her through anything this intense. We have a consult with Jahrling's scheduled for next week. Our daughter has an inoperable retinal detachment in her right eye, due to Incontinentia Pigmenti.
My 2 year old daughter has nystagmus and something as yet undiagnosed (20:360 acuity but good functional vision). We currently live in MA near Perkins and the resources are tremendous. However I will need to move out of state to find a new academic job soon. I am trying to find out what college towns have nearby school districts with good support for VI children.
Dear Comrades (And I do not use that word lightly. It is a war we fight everyday for our children), I have a dilemma that I am struggling with and really need other parents thoughts who go through the same worries that I feel everyday. Berkley (my angel) has been blind since birth. She has some thyroid problems, however other than that she is "normal"! What a term..."normal".