My son 6yr has 18p-22q11.2 and as a result of these two conditions has hypotonia and hypermobility and uses a fist grip rather than a pincer resulting in his ability to write being limited to around 10-15 words in an hour. he is now starting to suffer and fall so far behind in school. He also has hearing loss and is fitted with transmitters in school.
Home life is very poor. Mother is very yound and not engaged. He is attending a developmentally disabled 3 year old prek program 4 days a week. He does have some language and will spontaneously speak in short sentences. We need to teach him concepts such as left/right, up/down, front/back etc.
Hi Moms and Dads,
My son is blind due to a combination of LCA and CVI (he has a metabolic disorder, which was misdiagnosed as infant leading to a stroke at 4mo), because of this stroke we knew as he got older learning disabilities would probably manifest.
They are all nonverbal and they have different impairments.
My son is 31 and has multiple disabilities including cortical blindness. He can see colors and shapes but needs voice overs for directions. I mistakenly got him an android tablet last Christmas and none of the apps were accessible for him except for the stories read aloud.He loves to interact verbally with others, etc.