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my 3 year old son has CVI (little to no vision) and wakes up almost every day at 3:30 am and very rarely will go back to sleep.

Submitted by henrys mom on Wed, 01/11/2012 - 5:27am

He does not have an issue falling asleep. He does this regardless of the time he goes to bed at night.We even tried having him sleep downstairs in case a noise was waking him in his room and still 3:30 wake up call. Any different ideas/suggestions?

My son with CVI is frightened by certain common noises. Any suggestions to decrease his fear when he hears them?

Submitted by henrys mom on Wed, 12/07/2011 - 1:18pm

He is scared by "celebration" sounds like "horray!" "Yeeeaaahhh!" And "wheeee". Also scared of cow mooing and snake hissing sounds.

I am looking for a doctor that can help my daughter who is 13 now, she was born with anophthalmia and wants a prosthetic eye

Submitted by michglasgow on Wed, 11/23/2011 - 7:35pm

when she was a baby and toddler, she had a conformer in her eye, but her muscle kept pushing it out, and so the would stitch it in but it would keep coming out. to make a long story short, they stopped putting them in. She is 13 now and wants a prosthetic eye. Does anyone know a Doctor that is skilled in this area and can help her? thank you

My son has Cone Dystrophy with VA 6/270. How independent can he be as an adult? Will he be able to get around on a bicycle, for example.

Submitted by malandsannet on Tue, 10/18/2011 - 8:22am

He is legally blind and is busy learning to use a cane.

My 15 year old nephew was born without any eyes, (only blank sockets) and does not hear, he bites himself fiercely, what to do?

Submitted by shadrach on Tue, 08/23/2011 - 8:47am

He is in a world of not knowing anything but frustration, he bites himself all the time, very seriously down his entire arms, he sleeps curled up on floors with his comfort blanket, trys to communicate with loud (Aggggg) outbursts, has never been to a special school, does he know anything around him? what can family do to help him grow and be somewhat content, I feel he is always in pain, and his parents use medications the doctor prescribed to keep him drugged all the time. he bangs his head against walls etc. does he even know that we are there?