My 1st 6 year daugher is suffering from LCA, bcoz of fear in our mind of 25% risk in second child, we were forced to take a decision for abortion twice. now again my wife is pregnant and we want to continue the pregnancy, can any one give me good suggestion??? also can some one introduce themselves who is in the same situation and has normal 2nd child...
Would like to find groups/communities that I can learn more about how to help my kid and advocate for better resources at our local schools. Thanks!
She was born with severe bilateral micropthalmia caused by a goene deletion called OTX2. When she was 2 yrs old when someone would talk she would repeat one word in the sentence. She then abruptly stopped when she was 3. She did start walking at 3 and people told me she would talk again when she wasn't consentrating on walking. That was 2 1/2 years ago and she still isn't talking.
re: your article on appropriate toys for blind/VI...
Two year old is losing the limited vision he has in the left eye because he won't wear his glasses. Help!
My 2 year old daughter has nystagmus and something as yet undiagnosed (20:360 acuity but good functional vision). We currently live in MA near Perkins and the resources are tremendous. However I will need to move out of state to find a new academic job soon. I am trying to find out what college towns have nearby school districts with good support for VI children.
He does not have an issue falling asleep. He does this regardless of the time he goes to bed at night.We even tried having him sleep downstairs in case a noise was waking him in his room and still 3:30 wake up call. Any different ideas/suggestions?
He is scared by "celebration" sounds like "horray!" "Yeeeaaahhh!" And "wheeee". Also scared of cow mooing and snake hissing sounds.
when she was a baby and toddler, she had a conformer in her eye, but her muscle kept pushing it out, and so the would stitch it in but it would keep coming out. to make a long story short, they stopped putting them in. She is 13 now and wants a prosthetic eye. Does anyone know a Doctor that is skilled in this area and can help her? thank you