What social media do you find most helpful/are most active in? I'm a new parent looking to learn!
Submitted by wonderdad on Feb 20, 2013 - 5:18pm
Would like to find groups/communities that I can learn more about how to help my kid and advocate for better resources at our local schools. Thanks!
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Posted by Amber Bobnar on Feb 20, 2013 - 8:55pm
I'd say the best places to find groups to join online are Yahoo Groups and Facebook. I like Yahoo Groups because they tend to be active and have in depth conversations; I like Facebook groups because they can get a bit more personal since you can actually see photos of people who are participating and go check out their profiles or friend them.
On Yahoo, you could join the BVI-Parents group: http://groups.yahoo.com/group/BVI-Parents/
Or look for groups that are related to your child's diagnosis. My son has LCA and Joubert Syndrome, so I'm on the LCA and JS groups:
http://groups.yahoo.com/group/LCA/
http://health.groups.yahoo.com/group/joubertsyndrome/
On Facebook you might want to look for groups specific to you area, like this group in Ohio:
https://www.facebook.com/groups/parentsofblind.children/
Or your child's diagnosis, like the MAPS group:
https://www.facebook.com/groups/123750425284/
My son doesn't have Micro/Anophthalmia, but I do love that MAPS group - the parents on that group are so supportive and smart!
Posted by Amber Bobnar on Feb 21, 2013 - 3:08pm
There are lots of great answers to this question on our Facebook page too: https://www.facebook.com/wonderbaby.org/posts/510566825651795?comment_id...