Anastasia writes about her daughter Lydia, who has anophthalmia. Lydia is still a baby and Anastasia has decided that Early Intervention services are not helping Lydia develop so she's opting out. What do you think?
There is pain watching a child open a gift you know isn't appropriate for them, and I don't want to deny loved ones the joy of giving a gift. How do I channel the happiness of the season when things are just so hard?
If you're in the market for a preschool program for your special needs child, you may be wondering what to look for, what questions to ask the teachers, and how to make your final decision. Here's what we recommend you look for in your prospective program.
"What's wrong with her eyes?" Do people ask you questions about your blind child? What do you say?
A call to couples and parents raising special needs kids to prioritize sex and physical intimacy in their relationships.
A doctor in the Netherlands is developing a treatment for LCA that could help patients with the CEP290 mutation.
What You Might Not Know About Destiny the Whale Shark in Finding Dory (HINT: Maybe she needs a white cane?)
There's been a lot of talk about how Dory's disability is represented in Finding Dory, but not so much buzz about the visually impaired whale shark character, Destiny. Let's change that!
Goalball is a fast-paced and active physical sport that does not require vision to play. It's a fun recreation for children who are blind.
Certified Orientation and Mobility instructor Susan Shier Lowry gives tips on how to encourage young blind children to reach out and touch while walking through familiar environments. Trailing techniques are an important part of O&M.
Early Orientation and Mobility skills for blind children can be taught with pre-canes or push toys. Learn how to choose the best tools and when to introduce them.
Learning your baby is blind is hard... but you will move on! Janine says, "Life was continuing and I started to realize how strong we were becoming. The tears were drying up and a new attitude was forming. I'd turned a corner; I'd accepted his condition and was going to embrace this new life."
Gwen writes about her baby daughter, Ivey, and the medical issues she faces. Gwen finds strength in her friends, family and even strangers who are drawn to her little girl.
If you are the primary caregiver of a special needs child, you probably worry about what would happen if you were gone.