All your questions about Leber's Congenital Amaurosis (LCA) are answered here in one place. Don't see your question? Then just send us an email and we'll get right on it!
If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in order to confirm the diagnosis. You're probably wondering what the test is like and whether or not you should do it now. We'll explain what the test was like for our family and hopefully this will help you make your own decision.
If you are considering genetic testing to determine the gene causing your child's LCA, you probably have lots of questions about the test as well as the results. We'll try to answer some of those questions here.
Looking for fun toys and games that will keep your kids entertained? Want toys that are great for parties? We list our favorite party toys for kids with little or no vision.
What if you could design your own play area that would stimulate your blind baby's senses and make them feel safe and willing to explore at the same time?
Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low vision and that they should never give up on their children.
Enter to win a Chunky Shapes Puzzle by Melissa & Doug with braille labels and a Noah's Ark print/braille book and tactile illustrations set from National Braille Press!
Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same situation.
Enter to win a fun, large rib-it-ball! This ball is perfect for playing with friends. It's light weight, crinkles when you touch it, and the high-contrast colors are perfect for kids with low vision.
Choose from five wonderfully crafty art projects adapted for blind children that celebrate fall! Make prints and wreaths with apples and leaves, create your own tree, or decorate pumpkins!
L. Penny Rosenblum is a TVI, a parent and student advocate, and has a vision impairment. She writes about what it was like learning to advocate for herself as a child and how to teach these skills to your own children.
TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.
Daria's CD, Grandchildren's Delight, is the perfect way to share traditional folk Americana songs with your children (or grandchildren). Find out how to win a free copy along with a washboard, too!
Carol writes about her granddaughter, Riley, who was born blind. She talks about the special relationship grandparents have with their grandchildren and encourages other grandparents to support their families and get involved!
Aquatherapy, also known as water therapy or aquatic therapy, is a great way to increase body awareness and muscle strength and coordination in children with developmental delays.
Being a grandparent is so important, maybe even more so for grandparents of blind children. Here are some tips to help you relate to your family and give them the support they need.
What are you getting your child for Christmas this year? We've put together our "wish list" of toys and games we'd like to get Ivan for Christmas... and all of them are perfect for young blind children!
Here's a quick and easy craft that is perfect for the holidays - learn how to make your own jingle bells with bells and pipe cleaners. You can wear them like a bracelet or anklet or even make a jingle stick!
How to choose the best travel crib for your baby without waisting your time or your money. We'll show you how to make your dollar really count when buying a travel crib for your baby.
Using an object calendar or calendar box can help blind children transition from one activity to the next and organize their day. We'll show you how to make your own calendar using tactile symbols and how to use it effectively.
Daria writes about the power of music to bridge the generations. Grandparents sing to their grandchildren to connect and play, and this can be very powerful for blind children as well.
Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Skylar is now a political science graduate student at UC Santa Barbara. Frank wants other parents to understand that the sky is the limit for kids with LCA.
This is a great craft idea for the holidays! Trace your child's foot on brown paper and their hands on red paper and glue together - you've got yourself a reindeer ornament ready to decorate and hang on the tree!
Learn more about iPad apps for blind children! Mary reviews one of her favorites - a coloring book app with an amazing zoom feature for children with low vision.
How to choose the best wooden high chair for your baby without waisting your time or your money. We'll show you how to make your dollar really count when buying a wood high chair for your baby.
