Submitted by mohamed_hassan on Feb 09, 2016 - 8:44am
بانتى عمرها 11 شهر ومن حوالى 3 اشهر لاحظنا حركه بالراس بملانها فجاه لجزء اقل من ثانيه تتكرر 10 مرات فى اليوم وهناك ايام اقل بكثير
الطبيب اكد انها كهرباء فى المخ ونوبة صرعيه ولكن طلب تخطيط مخ وتحليل الدم
سؤالى تحليل الدم لابنتى فيه بعض الخلل مثل الحديد والكرات وهكزا فهل من الممكن ان يكون السبب ذلك وليس صرع
اخيرا اثناء التخطيط فشلنا بسبب ان ابنتى تستيقظ فور لمسها وكررنا 4 مرات والدكتور مصمم بدون مهدء هل من الممكن اعطائها مهدء او شي ليتم تثبيتها
February is the perfect time to celebrate love and friendship with parties and crafts... and of course, making and receiving the perfect Valentine!
There are so many ways to say "I love you," but finding a way that speaks to your child is what we want most as parents and friends. That's why we've organized the list below of activities for children with visual impairments or multiple disabilities. We've included fun snacks, incorporating braille, plus textures and tangible objects. The activities can be adapted for children of varying sight levels and physical abilities.
Celebrate love and friendship all month long with these multi-sensory activities for kids with visual impairments!
Just like you, I've sat in the ophthalmologist's office hearing my worst fears confirmed: "Your baby is blind. There's nothing we can do. I'm so sorry." I walked out of that office stunned and not really able to process the information. Which words are worse, "Your baby is blind" or "There's nothing we can do"?
10 years ago when we had this experience that was probably true - there really wasn't much you could do to treat a retinal disease. These days, however, there are actual real options on the market that you can explore now... and even more on the horizon in the future.
Blindness due to a retinal disorder is no longer completely untreatable. There are devices that can restore or augment sight as well as some serious movement in the world of genetic therapy and stem cell research.
Have you heard the HUGE news? Well, it's big because it's such a momentous step forward, while in reality it's really just a little one-inch plastic figure. But this little guy is in a wheelchair!
He's part of the new LEGO “Fun in the Park” play set. LEGO has included a young man using a wheelchair as just an everyday occurrence at the park. He's not in the hospital, he's not sick, he's not a patient. He's out having fun with his friends at the park! Way to go LEGO!
This giveaway is now closed and the winner has been contacted. Thank you to everyone for entering!
The holidays are over, but the next holiday is already right around the corner... Valentine's Day! I love Valentine's Day because it is so much easier than Christmas. All you need to do is go to the store and buy some candies and pre-made Valentine's cards for your child to hand out in class....
Wait a minute. None of those cards have braille on them!
Enter to win a pack of braille Valentine's Cards from National Braille Press! The new design features the text "Just Popping Through with a Valentine for You." Contest ends February 1st, 2016.
Sometimes it seems like all the cool medical news is coming out of retinal gene therapy or stem cell research, but what about optic nerve treatments? Everyone knows you can't regenerate nerves, so if the optic nerve is damaged or underdeveloped there really aren't any options. Or are there?
I had the opportunity to speak to Karmen Trzupek, M.S., C.G.C., a genetic counselor who specializes in inherited retinal and macular diseases, about genetic testing for retinal diseases like LCA.
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Submitted by monica on Jan 15, 2016 - 10:48am
My baby girl was diagnosed with down syndrome and she also has bilateral microphathalmia. We don't have official eye diagnosis but I can tell thats what it is. We have retina specialist exam under anesthesia at the end of January. I need support and other parents who have been here. Any assistance is welcome. Are there any families out there in Florida?
My son recently turned six years old, and he is in a Pre-K program at a preschool for blind and visually impaired children. He has bilateral ONH with light perception. We are planning for Kindergarten, and we don't know how mainstream kindergarten classes would accommodate his needs. Does anyone have any guidance? My fear is that he will be in a classroom full of sighted children with visually based teaching methods and be lost. How have your children adapted to this type of placement?
January 4, 2016, is the start date of the Unified English Braille (UEB) code to become the official Braille Code in the United States. This is the date that the transition to UEB should be completed for schools and organizations nationwide.The Braille Authority of North America (BANA) decided in November 2012 to make the transition to UEB from English Braille American Edition (EBAE), with an original proposal memo dating all the way back to 1991! Many braille readers, parents and teachers may be wondering how the change will affect them.