بانتى عمرها 11 شهر ومن حوالى 3 اشهر لاحظنا حركه بالراس بملانها فجاه لجزء اقل من ثانيه تتكرر 10 مرات فى اليوم وهناك ايام اقل بكثير
الطبيب اكد انها كهرباء فى المخ ونوبة صرعيه ولكن طلب تخطيط مخ وتحليل الدم
سؤالى تحليل الدم لابنتى فيه بعض الخلل مثل الحديد والكرات وهكزا فهل من الممكن ان يكون السبب ذلك وليس صرع
اخيرا اثناء التخطيط فشلنا بسبب ان ابنتى تستيقظ فور لمسها وكررنا 4 مرات والدكتور مصمم بدون مهدء هل من الممكن اعطائها مهدء او شي ليتم تثبيتها






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LEGO play set featuring a boy in a wheelchair

Have you heard the HUGE news? Well, it's big because it's such a momentous step forward, while in reality it's really just a little one-inch plastic figure. But this little guy is in a wheelchair!

He's part of the new LEGO “Fun in the Park” play set. LEGO has included a young man using a wheelchair as just an everyday occurrence at the park. He's not in the hospital, he's not sick, he's not a patient. He's out having fun with his friends at the park! Way to go LEGO!

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Regenerating Optic Nerves

Sometimes it seems like all the cool medical news is coming out of retinal gene therapy or stem cell research, but what about optic nerve treatments? Everyone knows you can't regenerate nerves, so if the optic nerve is damaged or underdeveloped there really aren't any options. Or are there?

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My baby girl was diagnosed with down syndrome and she also has bilateral microphathalmia. We don't have official eye diagnosis but I can tell thats what it is. We have retina specialist exam under anesthesia at the end of January. I need support and other parents who have been here. Any assistance is welcome. Are there any families out there in Florida?






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My son recently turned six years old, and he is in a Pre-K program at a preschool for blind and visually impaired children. He has bilateral ONH with light perception. We are planning for Kindergarten, and we don't know how mainstream kindergarten classes would accommodate his needs. Does anyone have any guidance? My fear is that he will be in a classroom full of sighted children with visually based teaching methods and be lost. How have your children adapted to this type of placement?






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