When you see my daughter, please ask questions! I believe it is my role to educate others about being deafblind and how this shapes (but doesn't define) my child.
How can your baby be perfect if he can't see? Obviously there is something really wrong with his eyes, and isn't perfect the absence of wrong?
I recently asked this question to a group of special needs moms: "If you had a magic wand that could 'cure' your child's disability, would you use it? Why or why not?" What they said might surprise you!
Janyia is a little girl with several medical conditions: Arthrogryposis, Cerebral Palsy, Chronic lung disease and Hydrocephalus. This is her story.
Charlotte looks at special needs parenting from a new perspective; the perspective of a parent who is also raising a typically developing child.
Pinterest is one of the best ways for a parent of a child with special needs to find what they need on the internet. Here are my favorite Pinterest boards for parents of kids who are blind or visually impaired.
A list of books (and videos) that parents of blind & visually impaired children should read (and watch). We've listed only the best of the best here so you can read the important books and then get on with the important task of raising your blind child.
My son Jaxon was born with bilateral corneal clouding. We have been through a lot with this little man and I wrote a blog post about some of the things that have helped me along the way.
Traveling with a child who is medically complex can be difficult. Not only do you have all the normal travel woes, but there's medications, medical equipment and emergencies to prepare for. Catherine Rose gives travel tips that will keep your vacation running smoothly!
If you're the parent of a child with medical complexities you're probably feeling pretty stressed. Catherine gives you advice on how to keep your medical records organized so you can feel more in control!