Nick writes about the challenges of raising a baby who is blind, including medical issues and his desire for normalcy in his family.
Learning your baby is blind is hard... but you will move on! Janine says, "Life was continuing and I started to realize how strong we were becoming. The tears were drying up and a new attitude was forming. I'd turned a corner; I'd accepted his condition and was going to embrace this new life."
Gwen writes about her baby daughter, Ivey, and the medical issues she faces. Gwen finds strength in her friends, family and even strangers who are drawn to her little girl.
If you are the primary caregiver of a special needs child, you probably worry about what would happen if you were gone.
Becoming a parent to any child is magical in its own right, but here is a list of observations about things only a mother of a child who is visually impaired would understand.
Here's something I've learned in the last 10 years: Raising a special needs child is hard, but raising a special needs child who is medically complex is much harder.
The Caregiver's Notebook gives those who care for someone with multiple needs a handy place to organize information.
When you see my daughter, please ask questions! I believe it is my role to educate others about being deafblind and how this shapes (but doesn't define) my child.