Found an online resource you want to share with other parents? Enter the link below!
Most Recent Resources
- Dave deBronkart's latest book, Let Patients Help, is full of great advice and wisdom for anyone who likes to stay alive and avoid issues in the hospital. It's a must read for patients, caregivers, doctors, nurses, healthcare providers, hospital leaders, etc.
- Disease InfoSearch, a new online tool from Genetic Alliance, connects healthcare providers, researchers and the general public with support groups, relevant and timely peer-reviewed articles, open clinical trials, and general disease information about thousands of genetic disorders.
- The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness. Their goal is to help you make sense of this journey by offering hope, helping you understand your child's needs, assisting you with next steps and offering resources along the way.
- This book is a guide for parents of children with learning challenges (as well as parents of typically developing children ages birth-5 years) to develop the sensory, visual motor and cognitive skills that lead to reading and writing.
- The Harvard Family Research Project has compiled a resource guide for parents and teachers titled Family Engagement and Children with Disabilities. This resource guide is intended to bridge the gap between school and home and help families become greater partners in their children's educations.
- Does your child like mystery and fast paced action? How about dogs? Then this just might be the audio book series you've been looking for! There are over 50 books in this series where Hank (who is a dog, of course) narrates his adventures as Head of Ranch Security.
- NetBuddy is a UK site that provides support to parents and caregivers of children and adults with special needs. The site is designed to make it easy to share and find "tips" - all of those ideas and tactics that many of us have learned the hard way and now would like to share with others.
- Lakeshore Learning sells adaptive equipment that you can pair with any of their multiethnic school dolls. You can choose a doll that looks like your child (they offer many different skin tones and hair colors) then pick the equipment they use to make a doll that your child can really relate to!
- Thomas is visually impaired and Jessica writes about the trials and successes of raising a little boy who is blind. She focuses quite a bit on the positive and explains how to get the services and resources all families need. She also writes a lot about feeding issues, beginning braille skills, O&M (Tom is so cute with his cane!) and iPad apps.
- Perkins is now offering online workshops for teachers and parents of children who are visually impaired. These workshops are sort of like “mini” online courses that offer an in-depth learning experience. Workshops can be done at any time that is convenient for you.
- Created to help families and parents of children with Albinism and its related visual impairments obtain and afford all of the vast items, devices and treatments their eyes need.
- AFB and Perkins have joined forces to ensure the Expanded Core Curriculum is taught in mainstream schools. This website is a terrific resource for parents who need to know exactly what the Expanded Core Curriculum is and how it's supposed to be implemented on an IEP and in the classroom.
- A very simple idea, but kind of ingenious at the same time, this button simply yells "no!" every time you press it. Children who are non-verbal often use switches for communication, so buttons may be a normal part of your day, but this one is really more of a toy than a communication device.
- This is a collection of free downloadable resources for families with children who are deafblind. Topics include early intervention services, the evaluation process for children who are deafblind, checklists for Individualized Education Program (IEP) meetings, appropriate public education options, the transition to adult life and more.
- This downloadable PDF, by Occupational Therapist Donna Shaman, explains what CVI is in very easy to follow terms and develops a program that teachers and therapists can use to best teach students with CVI. The team approach that Donna encourages works best with family involvement too, so this can be a great way for parents to approach their school districts if they feel their child needs more structure in class.
- OTPlan matches the skills you want to work on, with the materials you have, to a detailed activity that will help you strengthen certain skills. Each activity details the purpose, materials needed, process, rating for the activity, and comments by people just like you.
- Caroline's Cart is the brilliant idea of Drew Ann Long. She has developed an accessible shopping cart designed specifically for larger children and adults with low muscle tone and multiple disabilities. If your child is too big for a standard shopping cart at your grocery store then you probably know how badly this cart is needed.