Shared by cmellor
This is a lovely story about Evelyn and her journey so far through life. Diagnosed with rare Familial Exudative Vitreoretinopathy (FEVR), which is a genetic condition where the blood vessels in the eye are damaged and weak and can bleed. Evelyn has very poor sight, but that hasn’t stopped her. She is starting to learn Braille and her mother Emma is documenting her journey with the hope to help others.