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Quick View Medical Records
Learn how to create a "Quick View" for your child's medical records. The concept is to create a one-page visual aid that you can hand out to nurses, doctors, and other medical professionals that lists your child's medical alerts, medical background, recent surgeries, and tips for interacting with them.http://caringcalm.blogspot.com/2011/03/create-calm-for-chaotic-times-quick.html
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The United Mitochondrial Disease Foundation

Our mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support...
http://www.umdf.org/site/c.otJVJ7MMIqE/b.5472191/k.BDB0/Home.htm
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Stickler Syndrome

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Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared...
http://www.familyvillage.wisc.edu/lib_stic.htm
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Stargardts Disease

Stargardts Net will be the "home" for anyone and everyone who has an interest in Stargardts Disease. Via the website can we tell our...
http://www.stargardts.net/
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Retinoblastoma

Dr. Abramson is Chief of the Ophthalmic Oncology Service at Memorial Sloan-Kettering Cancer Center (MSKCC) in New York City. This...
http://retinoblastoma.com/retinoblastoma/
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OMIM: Searchable Database of Genetic Disorders

Online Mendelian Inheritance in Man ® . OMIM is a comprehensive, authoritative, and timely compendium of human genes and genetic...
http://www.ncbi.nlm.nih.gov/omim/
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