Shared by cmellor
So it’s been over 6 months since I updated my blog post from last year and I have finally found some time to sit down and give you all an update on how things are progressing with Mia and what’s been happening.
I am going to start off with covering all the clinical bits and where we are and what’s been going on. Not long after my last post, Mia was booked in to have an MRI scan as recommended by GOSH. I can only describe this as one of the worst experiences and stressful days I’ve ever had. Mia had to be sedated and the sedation didn’t work. To cut a long story short, our local hospital hadn’t been communicated to properly around Mia’s additional needs and things just weren’t in place that should have been so Mia was partially sedated, but not enough to go in for the MRI. The MRI didn’t happen and we wasted a whole day at hospital awaiting for this to wear off and it was at this point I had come to the end of my patience, with what I could only describe as a lack of urgency in helping my daughter. A few choice words were exchanged and things then got sorted, but I will come back to this point later in this article as my view on things has changed somewhat since this incident. [Continue Reading]