ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.
Resources
Parenting Special Needs Online Magazine
The Parenting Special Needs Online Magazine explores the changing face of parenting a special needs child. Continually seeking change for the better with new and helpful information that is “simplified” to fit into your already busy schedule.
Pop-Up IEP for Parents/Advocates
Check out this website to read some “conversation stoppers” that parents may hear at an IEP meeting and ideas for possible responses.
Royal National Institute for the Blind (RNIB)
In the United Kingdom, the Royal National Institute of Blind People (RNIB) is the leading information and support organization for individuals who are blind or visually impaired.
Songs for Teaching: Using Music to Promote Learning
A collection of songs categorized by subject so you can find the perfect song to fit any curriculum or lesson plan – or just to emphasize an idea at home.
Stargardts Disease
Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who also have Stargardts.
Texas Association for Education and Rehabilitation of the Blind and Visually Impaired (TAER)
The purpose of the Texas Association for Education and Rehabilitation of the Blind and Visually Impaired (TAER) is to render all possible assistance to the promotion, development, and improvement of all phases of education and rehabilitation of persons of all ages who are blind and visually impaired.
The United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation’s mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Washington State School for the Blind
Washington State School for the Blind serves children from birth to age 21 in Washington State.
West Virginia Schools for the Deaf and the Blind
The West Virginia Schools for the Deaf and the Blind educate students who are deaf, hard of hearing, blind and low vision.
Blindskills, Inc.
Blindskills’ mission is the dissemination of information to blind and visually impaired people and their families through DIALOGUE Magazine, a toll-free help line, a monthly local support group open to anyone with an interest in vision loss, and their web site.
Glaucoma Service Foundation to Prevent Blindness
The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.
Louisiana Center for the Blind
The Louisiana Center for the Blind provides residential orientation and adjustment training to legally blind adults. Students remain in training generally from six to nine months depending upon individual needs.
Orientation and Mobility for Children
This site can assist with questions you may have regarding the use of the long white cane, the purpose of the cane, and the importance for individuals who are blind, legally blind or partially sighted to use the cane.
Parent Advocates for Visually Impaired Children (PAVIC)
Parent Advocates for Visually Impaired Children (PAVIC) is a large support network for parents and families of children who are blind or visually impaired.