Found an online resource you want to share with other parents? Enter the link below!
Most Recent Support Resources
- The Caregiver's Notebook gives those who care for someone with multiple needs a handy place to organize information.
- Raising a child with significant special or medical needs is challenging. Have you stopped to think about how that challenge is effecting your relationship with your spouse or partner?
- Catherine presented at the Stanford MedX conference in 2013 about her place as a mother who fights for her children, manages their health care and finds ways to encourage communication between professionals and patients. Her presentation is a must-read for mothers of special needs children everywhere!
- Share your American dream in National Disability Institute's My American Dream: Voices of Americans with Disabilities Video Contest. Share your goals and show America that people with disabilities want what everyone wants – a chance to live their American dreams.
- The Harvard Family Research Project has compiled a resource guide for parents and teachers titled Family Engagement and Children with Disabilities. This resource guide is intended to bridge the gap between school and home and help families become greater partners in their children's educations.
- NetBuddy is a UK site that provides support to parents and caregivers of children and adults with special needs. The site is designed to make it easy to share and find "tips" - all of those ideas and tactics that many of us have learned the hard way and now would like to share with others.
- "Amber & Max" is a candid sharing of the good, the bad, and the ugly experiences we have in living through Septo-Optic Dysplasia. It began as an effort to share information with family living out-of-state and grew into a way to offer support and understanding for families going through similar situations.
- The empowering guide that taught parents and teachers how to promote the development of young children with visual and multiple impairments is now available in an exciting new edition! Reach Out and Teach reflects the concerns of today’s families and professionals as well as the latest research on learning in infancy and early childhood.
- This blog focuses on the Expanded Core Curriculum (ECC) for visually impaired students and how to implement it into everyday life. There are posts with topics on all aspects of the ECC and for a range of vision impairments, ages and abilities.
- Parent Advocates for Visually Impaired Children (PAVIC) is a large support network for parents and families of children who are blind or visually impaired.
- NAPVI is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and training to assist parents in helping children reach their full potential.
- MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
- Milagro is an active, athletic, adventurous child: female, blind, and described proudly by her parents as a child with a "wild side." This DVD "Letting Your Child's Wild Side Out" encourages parents of kids with disabilities, particularly blindness, to use the strategies they learn in early intervention to raise a child confident in mastering new skills of all kinds.
- If you are just beginning your search for information in response to a recent diagnosis, the first thing you should know is that your child can lead a very fulfilling life with or without eyesight. Your support will provide all the encouragement your child needs; and when you understand blindness and how people do things without eyesight, you can pass this knowledge on and help make that fulfilling life a reality. This site will help you find the best resources for yourself and your child.
- FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and links to local resources.
- Tele-Support Groups for parents of children with visual impairment are open-ended, informative and supportive discussions of issues and topics of concern for parents raising children with visual impairment. These groups are composed of parents with children who have the same eye conditions. They are professionally facilitated and are offered at no cost to parents. They meet by phone on a weekly basis.
- POSITIVE EXPOSURE, founded in 1997 by former fashion photographer Rick Guidotti and Diane McLean, is a highly innovative arts organization working with individuals living with genetic difference.
- Founded in 1983, the National Organization of Parents of Blind Children is a national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.