Most Recent Support Resources
Share Resources
Found an online resource you want to share with other parents? Enter the link below!
Most Recent Support Resources
Dave deBronkart's latest book, Let Patients Help, is full of great advice and wisdom for anyone who likes to stay alive and avoid issues in the hospital. It's a must read for patients, caregivers, doctors, nurses, healthcare providers, hospital leaders, etc.
Shared by drcatherinerose in Books, Medicine, Support | Add new comment
The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness. Their goal is to help you make sense of this journey by offering hope, helping you understand your child's needs, assisting you with next steps and offering resources along the way.
Shared by Amber Bobnar in Eye Disorders and Syndromes, Organizations & Information Sites, Support | Add new comment
A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).
Shared by Anonymous in Support | Add new comment
NetBuddy is a UK site that provides support to parents and caregivers of children and adults with special needs. The site is designed to make it easy to share and find "tips" - all of those ideas and tactics that many of us have learned the hard way and now would like to share with others.
Shared by Amber Bobnar in Organizations & Information Sites, Support | Add new comment
Thomas is visually impaired and Jessica writes about the trials and successes of raising a little boy who is blind. She focuses quite a bit on the positive and explains how to get the services and resources all families need. She also writes a lot about feeding issues, beginning braille skills, O&M (Tom is so cute with his cane!) and iPad apps.
Shared by Jessica Kovacs in Organizations & Information Sites, Support | Add new comment
Created to help families and parents of children with Albinism and its related visual impairments obtain and afford all of the vast items, devices and treatments their eyes need.
Shared by amymeredith in Eye Disorders and Syndromes, Organizations & Information Sites, Support | Add new comment
This is a collection of free downloadable resources for families with children who are deafblind. Topics include early intervention services, the evaluation process for children who are deafblind, checklists for Individualized Education Program (IEP) meetings, appropriate public education options, the transition to adult life and more.
Shared by Amber Bobnar in Education & Development, Support | Add new comment
"Amber & Max" is a candid sharing of the good, the bad, and the ugly experiences we have in living through Septo-Optic Dysplasia. It began as an effort to share information with family living out-of-state and grew into a way to offer support and understanding for families going through similar situations.
Shared by am_elia in Support | Add new comment
A parent's perspective about raising a visually impaired child with Ocular Albinism. Journey through diagnosis, appointments, vision therapy sessions and more.
Shared by amymeredith in Eye Disorders and Syndromes, Organizations & Information Sites, Support | 1 Comment Add new comment
Visit the PPLVR Forums (Principles and Practice of Low Vision Rehabilitation) where the low vision community can share knowledge, discuss challenging cases, exchange ideas and get advice.
Shared by lgrube3 in Organizations & Information Sites, Support | 1 Comment Add new comment
AbilityPath.org is an online hub and special needs community for parents and professionals to learn, connect and live a more balanced life - through all phases of a child's growth and development.
Shared by Amber Bobnar in Support | Add new comment
Learn how to create a "Quick View" for your child's medical records. The concept is to create a one-page visual aid that you can hand out to nurses, doctors, and other medical professionals that lists your child's medical alerts, medical background, recent surgeries, and tips for interacting with them.
Shared by Amber Bobnar in Medicine, Support | Add new comment
The Independent Little Bee: A little something for children with vision impairments & their families
This blog focuses on the Expanded Core Curriculum (ECC) for visually impaired students and how to implement it into everyday life. There are posts with topics on all aspects of the ECC and for a range of vision impairments, ages and abilities.
Shared by robbs in Education & Development, Organizations & Information Sites, Orientation & Mobility, Support | Add new comment
Gayle's blog is also known as "hints for real life". She covers real life and how blind people cope with the situations that occur about fifty times a day.
Shared by Veera in Adaptive Technology, Support | Add new comment
Adoptive parents of kids who are blind or visually impaired are available for discussion, questions and answers, and general support in this Yahoo Group.
Shared by Veera in Adoption, Support | Add new comment
Here is a website especially for parents of kids with special needs. Founders Julia and Dawn create a community of families helping families.
Shared by Veera in Support | Add new comment
Parent Advocates for Visually Impaired Children (PAVIC) Inc. was formed in 1999. In the beginning, it comprised of about a dozen parents whose children were either blind, low vision, or with other handicaps. The main purpose for the group was to render support to each other.
Shared by Veera in Support | Add new comment
NAPVI is a national organization that enables parents to find information and resources for their children who are blind or visually impaired, including those with additional disabilities. NAPVI provides leadership, support, and training to assist parents in helping children reach their full potential.
Shared by Veera in Support | Add new comment
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition. MUMS' main purpose is to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
Shared by Veera in Support | Add new comment
Milagro is an active, athletic, adventurous child: female, blind, and described proudly by her parents as a child with a "wild side." This DVD "Letting Your Child's Wild Side Out" encourages parents of kids with disabilities, particularly blindness, to use the strategies they learn in early intervention to raise a child confident in mastering new skills of all kinds.
Shared by Veera in Support | Add new comment
If you are just beginning your search for information in response to a recent diagnosis, the first thing you should know is that your child can lead a very fulfilling life with or without eyesight. Your support will provide all the encouragement your child needs; and when you understand blindness and how people do things without eyesight, you can pass this knowledge on and help make that fulfilling life a reality. This site will help you find the best resources for yourself and your child.
Shared by Veera in Support | Add new comment
FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and links to local resources.
Shared by Veera in Education & Development, Support | Add new comment
Tele-Support Groups for parents of children with visual impairment are open-ended, informative and supportive discussions of issues and topics of concern for parents raising children with visual impairment. These groups are composed of parents with children who have the same eye conditions. They are professionally facilitated and are offered at no cost to parents. They meet by phone on a weekly basis.
Shared by Veera in Support | Add new comment
This is a list where parents of blind or visually impaired children can discuss topics related to raising their children, dealing with concerns about the educational system, public attitudes about blindness, etc.
Shared by Veera in Support | Add new comment
Meet other parents raising blind children through this Yahoo group made up of homeschooling families. Teachers of the Visually Impaired (TVIs) may also participate.
Shared by Veera in Education & Development, Support | Add new comment
Founded in 1983, the National Organization of Parents of Blind Children is a national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.
Shared by Veera in Organizations & Information Sites, Support | Add new comment