Amber Bobnar

Originally from Hawaii, Amber and her family moved to Massachusetts to be closer to Boston Children’s Hospital where her son, Ivan, now receives medical care.

 

She has a Master’s degree in English from Tufts University and spends most of her “free time” writing about being a parent of a disabled child on WonderBaby.org. But really most of her time is spent caring for and playing with her son.

Ivan on a plane

Special Needs

Our Trip to Cleveland: Looking for a Diagnosis

I tell the story of our trip to Cleveland where we visited the Cleveland Sight Center. Ivan had an ERG and was diagnosed with LCA. We also attended the LCA...

Ivan in his mini play area

Fine and Gross Motor, Sensory Activities, Toys

Make Your Own Mini Play Area!

If you don't have the space or money to invest in a large sensory play area for your blind baby we've got the solution for you!

Ivan tucked into his blanket

Sensory Activities

Make Your Own Color-Contrast Reversible Blanket!

Contrasts can really make a difference when playing with your low vision baby. Learn how to make a reversible blanket with a dark and light side so you can encourage...

clock

Braille and Literacy

Make Your Own Braille Clock!

Are you looking for a fun and inventive gift to make for a friend? Here's our idea for a beautiful Braille Clock - and you'll be amazed at how easy...

graduates

Eye Conditions and Syndromes

LCA and Education

How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.

Ivan at the pool

Sensory Activities, Visual Impairment

That’s Wet! Teaching your blind child about water and other wet things

Blind children encounter water in different forms all day long and we need to help them understand that while each experience is different they all involve the same concept: Water.