Amber Bobnar

Originally from Hawaii, Amber and her family moved to Massachusetts to be closer to Boston Children’s Hospital where her son, Ivan, now receives medical care.


She has a Master’s degree in English from Tufts University and spends most of her “free time” writing about being a parent of a disabled child on But really most of her time is spent caring for and playing with her son.

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Eye Conditions and Syndromes

DeafBlind Fact Sheets

This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.


Health & Nutrition

Gene Reviews: Searchable Database of Genetic Disorders

GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

baby with a bottle

Feeding and Eating

Make Your Own Bottle Holder!

Make a visually stimulating bottle holder for your blind baby that's simple to make and pretty to look at.

Ivan in his dad's hat

Advocacy, Visual Impairment

What Will I Be When I Grow Up? Career Choices for People who are Blind

Are you worried that your blind baby won't grow up to be independent and successful? We'll show you careers your blind child can look forward to.

The braille bag

Braille and Literacy

Make Your Own Braille Bag!

Here's a crafty idea that's simple and will also help raise braille awareness. Make a cute braille bag for your child and they'll be the talk of the town!

Ivan brailling

Braille and Literacy

Word Association Print/Braille Labels

Print/Braille labels from the American Printing House for the blind (APH) help you introduce Braille to your blind or visually impaired child.

Developmental Guidelines for Infants with Visual Impairment

Development, Visual Impairment

Developmental Guidelines for Infants with Visual Impairment

We'll review the book Developmental Guidelines for Infants with Visual Impairment and explain why it's a must read for parents of young blind children and blind babies.

baby with iPod

Music Play

Coolest CD’s for Kids

The best children's music that you've probably never even heard of. Check out these great performers and support up-and-coming stars!

mom watching baby crawl

Visual Impairment

Yes You Can! How to encourage your blind child without pushing too hard

Have you ever thought about all the things your child *can't* do because of their disability? It can be depressing, but one way to get over that is to figure...

making cake

Feeding and Eating, Visual Impairment

Learning in the Kitchen: Helping Your Blind Child Make Their Own Cake

Start a new tradition this year... Get your child in the kitchen and have them help you bake a cake! The smells and tastes are so yummy plus they'll get...


Eye Conditions and Syndromes

What’s an ERG?

If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...

Ivan with his dad in his sensory play area

Sensory Activities, Visual Impairment

Make Your Own Sensory Play Area for Your Blind Baby

What if you could design your own play area that would stimulate your blind baby's senses and make them feel safe and willing to explore at the same time?