Helpful Organizations 46
AbilityPath
AbilityPath.org is an online hub and special needs community for parents and professionals to learn, connect and live a more balanced life - through all phases of a child's growth and development.
National Blind Children’s Society
The National Blind Children's Society is a UK-based organization. Their mission is to enable blind and partially sighted children and young people to achieve their educational and recreational goals.
IBSA (International Blind Sports Federation)
IBSA is a full member of the International Paralympic Committee (IPC), where they are the legitimate representatives of sport for the blind.
American Council of Blind Students
The American Council of Blind Students (ACBS) is the student affiliate of the American Council of the Blind, the nation's leading consumer and advocacy organization of people who are blind or visually impaired.
National Organization of Parents of Blind Children (NOPBC)
Founded in 1983, the National Organization of Parents of Blind Children is a national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information.
Positive Exposure: Photography & Uplifting Stories
POSITIVE EXPOSURE, founded in 1997 by former fashion photographer Rick Guidotti and Diane McLean, is a highly innovative arts organization working with individuals living with genetic difference.
Stickler Syndrome
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting a pen pal group for all ages.
Joubert Syndrome Foundation
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.
Future Reflections: magazine for parents and teachers of blind children
Future Reflections is a magazine for parents and teachers of blind children. It is published quarterly by the American Action Fund for Blind Children and Adults in partnership with the National Organization of Parents of Blind Children.
Junior Blind of America
Junior Blind's mission is helping children and adults who are blind, visually impaired or multi-disabled achieve independence.
Lighthouse Guild
Lighthouse International is dedicated to fighting vision loss through prevention, treatment and empowerment.
OMIM: Searchable Database of Genetic Disorders
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.
National Organization for Rare Diseases (NORD)
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Prevent Blindness America
Founded in 1908, Prevent Blindness America is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.
Disability.gov
Disability.gov is the U.S. government's portal to a library full of resources and contacts about disability.
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