Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Research Studies, Visual Impairment
Family Interactions and Blind Children Research Study
University of Bristol is looking for families who can share videos of their children who are blind interacting with their friends and family.
Health & Nutrition, Parenting
Drool Rash vs Eczema: How to Tell the Difference
Drool rashes are common among teething babies and cause irritating red patches on the face and neck just like eczema, but there are key differences.
Feeding and Eating
Help! Milk is Coming Out Of My Baby’s Nose!
Babies’ spit-up flows out fairly gently without causing too much distress while vomit is forcefully expelled by stomach muscles contracting.
Feeding and Eating
Help! My Baby Won’t Burp!
Burping babies isn’t foolproof, and you might find that your baby won’t burp! It could be that they just don’t need to.
Health & Nutrition, Special Needs
Managing Medications: 7 Tips for Parents of Medically Complex Kids
When you have a child with complex medical issues chances are they are taking multiple medications. Learn how to make managing meds easier.
Health & Nutrition
My Baby Scratches Their Head a Lot: Should I Be Concerned?
It’s normal for babies to scratch their heads, but if your baby’s constant scratching causes skin irritation here's what to do.
Health & Nutrition
Help! My Baby’s Eyebrows Are So Crusty!
Your baby's newborn period is the peak time for cradle cap to strike and can leave your baby’s eyebrows looking crusty and not so cute.
Autism, Health & Nutrition
Getting My Special Needs Son the COVID Vaccine: One Mom’s Mission
While others debate the pros and cons of the COVID-19 vaccine, some desperate special needs families hopelessly search for resources to get their kids vaccinated.
Health & Nutrition
8 Devices for Monitoring Seizures in Children
Seizures are scary, but there are ways to monitor and predict them, from movement or breathing monitors to wearable devices and apps.
Eye Conditions and Syndromes, iPad Apps and Accessibility
Successful iPad Apps for Children with CVI
A collection of successful iPad apps for kids diagnosed with CVI as recommended by a TVI and CVI specialist.
Feeding and Eating, Health & Nutrition
Thickened Liquids: What is it, Who Needs it and Will Insurance Pay for it?
If your child has problems swallowing, or dysphagia, it can be difficult for them to get thin liquids down the right side of their throat when drinking.
Research Studies, Visual Impairment
Language Research for Parents of Blind Infants
The Bergelson Lab at Duke University is looking for families with blind infants to participate in studies about language development.
Eye Conditions and Syndromes, Visual Impairment
Why I laughed when my daughter lost her eye
Gwen tells funny stories about raising her daughter Ivey who has bilateral anophthalmia. Gwen says it's important for us to learn to laugh at ourselves and our lives and teach...
Health & Nutrition
10 Things you feel when you’re considering brain surgery for your child
If you are looking at the possibility of brain surgery for your child with epilepsy, what thoughts and concerns have plagued you?
Eye Conditions and Syndromes, Visual Impairment
Leber’s Congenital Amaurosis (LCA) FAQ
All your questions about Leber's Congenital Amaurosis (LCA) are answered here in one place. Don't see your question? Then just send us an email and we'll get right on it!
Feeding and Eating
Tray Haven Keeps Everything On Your Child’s Tray
Wouldn't it be great if you could just put up a fence around your child's tray so they couldn't lose their cups and toys? Now you can!
Eye Conditions and Syndromes, Visual Impairment
How one tiny fish may help us find a cure for blindness
At the University of Michigan Kellogg Eye Center, they are studying the visual system of the zebrafish in hopes of finding cures for blindness.
Eye Conditions and Syndromes
The search for a treatment for LCA10-CEP290
Laura Steinbusch reports on exciting news from ProQR and their trials for a treatment for blindness caused by LCA10-CEP290.
Feeding and Eating, Visual Impairment
Teaching a Blind Child How to Use a Spoon Independently
Tips, ideas and resources for teaching your blind child how to scoop and use a spoon on their own without using hand over hand techniques.
Research Studies
Assessing Visual Abilities in Children with Cerebral Palsy
Is it important to take vision into account when assessing the needs of children with cerebral palsy? You can help make that happen!
Eye Conditions and Syndromes
How Can I Get My Son To Keep His Glasses On?
A question for our parent community: I need proven techniques used to get a two year old to wear his new glasses. Any suggestions will be greatly appreciated!
Research Studies
Looking for LCA Advocates to Join Spark’s RPE65 Advisory Boards
This series of Advisory Boards hosted by Spark Therapeutics will be with members of the community living with an RPE65 genetic mutation.
Eye Conditions and Syndromes
Saving Vision by Tricking Rods into Thinking They’re Cones?
A different way to think about saving vision in inherited retinal diseases may be to turn rods into cones.
Eye Conditions and Syndromes, Visual Impairment
My child has LCA and presses her eyes. Is this normal? What can we do about it?
If your blind child is pressing or poking their eyes you may be looking for information on why they are doing this and what you can do to help them...