Discovering New Technology for Children and Adults with Severe Retinal Blinding Diseases

futuristic eye

Tasha Chemel, a recent graduate from the Harvard Graduate School of Education, who has LCA, is the recent recipient of an Educational Entrepreneurship Fellowship from Harvard. She is seeking information about people with severe early onset retinal disease and the treatments available to them. This information will inform the design of a new technology that has the potential to help people with these diseases access their residual vision.

If you have no useable vision and have an early onset retinal disease, or are the parent of a child with one of these diseases, or a medical practitioner who works with them, you are eligible to complete a survey. Each person who completes a survey will be awarded a $15 Amazon.com gift Certificate.

Links to surveys:

 


Related Posts

Doctor giving the child new glasses for her vision.

Eye Conditions and Syndromes, Support, Visual Impairment

Coping with a Diagnosis: Emotional Support for Families with Visually Impaired Children

Families with emotional support are more resilient. Learn how to establish emotional support with peers, professionals, and the community to help your family thrive.

Amanda smiling.

Eye Conditions and Syndromes

Finding Joy and Strength in Raising a Child with Anophthalmia

When raising a child with anophthalmia, be patient, be kind to yourself, and take it one day at a time. Your child will fill your life with love!

Anophthalmia

Eye Conditions and Syndromes, Visual Impairment

Anophthalmia: Navigating the Path from Diagnosis to Adaptation for Parents and Their Children

Anophthalmia is a rare disorder that results in childhood blindness. Early intervention services are important to help your baby maximize their potential.