Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

Young pregnant woman with glass of milk in the room.

Health & Nutrition, Parenting

Can I Drink Ensure While Pregnant?

While Ensure can promote health, you’ll want to make sure you understand the ingredients and the quantities that are right for you.

SIDS Triple Risk Model

Health & Nutrition, Research Studies

SIDS Breakthrough: New Research Indicates Possible Cause for Sudden Infant Death Syndrome

Researchers at the SIDS and Sleep Apnoea Research Group in Australia have discovered a possible cause for Sudden Infant Death Syndrome.

Mom and child smiling

Research Studies

Family Interactions and Blind Children Research Study

University of Bristol is looking for families who can share videos of their children who are blind interacting with their friends and family.

Cute baby boy playful bubbles saliva drool on child mouth.

Health & Nutrition, Parenting

Drool Rash vs Eczema: How to Tell the Difference

Drool rashes are common among teething babies and cause irritating red patches on the face and neck just like eczema, but there are key differences.

Daddy cleaning up baby's nose.

Feeding and Eating

Help! Milk is Coming Out Of My Baby’s Nose!

Babies’ spit-up flows out fairly gently without causing too much distress while vomit is forcefully expelled by stomach muscles contracting.

Couple burping their son.

Feeding and Eating

Help! My Baby Won’t Burp!

Burping babies isn’t foolproof, and you might find that your baby won’t burp! It could be that they just don’t need to.

mom reading medication labels

Health & Nutrition, Special Needs

Managing Medications: 7 Tips for Parents of Medically Complex Kids

When you have a child with complex medical issues chances are they are taking multiple medications. Learn how to make managing meds easier.

Baby scratching face.

Health & Nutrition

My Baby Scratches Their Head a Lot: Should I Be Concerned?

It’s normal for babies to scratch their heads, but if your baby’s constant scratching causes skin irritation here's what to do.

Health & Nutrition

Help! My Baby’s Eyebrows Are So Crusty!

Your baby's newborn period is the peak time for cradle cap to strike and can leave your baby’s eyebrows looking crusty and not so cute. 

covid vaccine

Health & Nutrition

Getting My Special Needs Son the COVID Vaccine: One Mom’s Mission

While others debate the pros and cons of the COVID-19 vaccine, some desperate special needs families hopelessly search for resources to get their kids vaccinated.

8 Devices for Monitoring Seizures in Children

Health & Nutrition

8 Devices for Monitoring Seizures in Children

Seizures are scary, but there are ways to monitor and predict them, from movement or breathing monitors to wearable devices and apps.

boy sitting at table with an iPad

Eye Conditions and Syndromes, iPad Apps and Accessibility

Successful iPad Apps for Children with CVI

A collection of successful iPad apps for kids diagnosed with CVI as recommended by a TVI and CVI specialist.

colorful thick drinks

Feeding and Eating, Health & Nutrition

Thickened Liquids: What is it, Who Needs it and Will Insurance Pay for it?

If your child has problems swallowing, or dysphagia, it can be difficult for them to get thin liquids down the right side of their throat when drinking.

a baby girl wearing vest with recorder

Research Studies

Language Research for Parents of Blind Infants

The Bergelson Lab at Duke University is looking for families with blind infants to participate in studies about language development.

laughing woman

Eye Conditions and Syndromes

Why I laughed when my daughter lost her eye

Gwen tells funny stories about raising her daughter Ivey who has bilateral anophthalmia. Gwen says it's important for us to learn to laugh at ourselves and our lives and teach...

Health & Nutrition

10 Things you feel when you’re considering brain surgery for your child

If you are looking at the possibility of brain surgery for your child with epilepsy, what thoughts and concerns have plagued you?

Ivan smiling

Eye Conditions and Syndromes

Leber’s Congenital Amaurosis (LCA) FAQ

All your questions about Leber's Congenital Amaurosis (LCA) are answered here in one place. Don't see your question? Then just send us an email and we'll get right on it!

little girl with her Tray Haven

Feeding and Eating

Tray Haven Keeps Everything On Your Child’s Tray

Wouldn't it be great if you could just put up a fence around your child's tray so they couldn't lose their cups and toys? Now you can!

zebrafish

Health & Nutrition

How one tiny fish may help us find a cure for blindness

At the University of Michigan Kellogg Eye Center, they are studying the visual system of the zebrafish in hopes of finding cures for blindness.

Eye Conditions and Syndromes

The search for a treatment for LCA10-CEP290

Laura Steinbusch reports on exciting news from ProQR and their trials for a treatment for blindness caused by LCA10-CEP290.

child eating with a spoon

Feeding and Eating

Teaching a Blind Child How to Use a Spoon Independently

Tips, ideas and resources for teaching your blind child how to scoop and use a spoon on their own without using hand over hand techniques.

boy in his wheelchair

Research Studies

Assessing Visual Abilities in Children with Cerebral Palsy

Is it important to take vision into account when assessing the needs of children with cerebral palsy? You can help make that happen!

Eye Conditions and Syndromes

How Can I Get My Son To Keep His Glasses On?

A question for our parent community: I need proven techniques used to get a two year old to wear his new glasses. Any suggestions will be greatly appreciated!

people at a conference

Research Studies

Looking for LCA Advocates to Join Spark’s RPE65 Advisory Boards

This series of Advisory Boards hosted by Spark Therapeutics will be with members of the community living with an RPE65 genetic mutation.