Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

baby eating

Feeding and Eating

10 Things You Should Know about Feeding Therapy

Frienship Circle's article on feeding therapy includes where to find help, assessment and therapy, as well as the family dynamics of it all, and the big one - patience!

A little girl with her hand on a light board with colorful shapes

Eye Conditions and Syndromes

CVI on APH: The Conversation Continues

A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).

DNA double helix

Eye Conditions and Syndromes

New Gene for LCA Discovered, PNPLA6

The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.

paper heart on background of pebbles

Eye Conditions and Syndromes

Creating a new Scleral Shell at the Ocularist

This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!

Boon Snug

Feeding and Eating

Boon Snug Sippy Cups and Straw Cups

Cool cup lids make any adult glass into a spill-proof glass for kids. Just snap on the lid, add a straw and you're ready to go!

lime green divided dish on mat

Feeding and Eating

Ez Pz: Easy clean dish and mat in one

A divided dish and table mat in one, these silicone plates are easy to stack, store and clean, and come in all sorts of cool colors.

cells, DNA, retinal implants montage

Health & Nutrition

Top Medical Breakthroughs in Vision in 2014

There have been a lot of medical advances in curing blindness in the past 12 months. Read about the most exciting breakthroughs in gene therapy, stem cells, artificial retinas and...

Embrace Watches

Health & Nutrition

A watch that warns about epileptic seizures

Stay on top of epileptic seizures with this sleek, contemporary wristwatch that detects subtle nerve movements that indicate a seizure is happening.

Adorabelly g-tube covers

Feeding and Eating

Adorabelly Design: whimsical covers for g-tubes

These g-tube covers are unique and whimsical and can be custom-ordered. They're a great way to make your tube-fed child feel happy about their tube.

Eye Conditions and Syndromes

Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa

Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in...

closeup of eye

Eye Conditions and Syndromes

More News on Stem Cells and Blindness

Scientists in the UK have discovered a cache of stem cells in the eye that could lead to reversing blindness for those with age-related macular degeneration and retinitis pigmentosa. It's...

Genzyme supporting gene therapy research for childhood blindness

Eye Conditions and Syndromes

Gene therapy research for childhood blindness gets a boost from Genzyme

LCA-1 research is getting a boost from Genzyme with a $900,000 grant to pursue gene therapy. Dr. Shannon Boye has had success with animals in the lab and is looking...

Magnified vision of cell

Health & Nutrition

3D Printing Cells is a New Step in Finding a Cure for Blindness

Researchers are using 3D printers to create artificial retinal nerve cells. They hope this will lead to using this to replace damaged retinal cells and ultimately cure retinal blindness.

Brown circle of retinal tissue from stem cells

Eye Conditions and Syndromes

First Human Trial for Macular Degeneration

The first human trials in using home-grown stem cells to treat age-related macular degeneration took place recently in Japan. This could be a breakthrough for other therapies involving stem cells...

Happy young children eating

Feeding and Eating

Notube: Special Feeding Counseling for Children with Feeding Tubes

Notube is a company that provides online coaching on how to wean your child off of a feeding tube and onto eating orally. Their approach is clinically based and provides...

Orange stem cell

Eye Conditions and Syndromes

Next Step for Macular Degeneration: Human Trials

A Japanese ophthalmologist has invented a way to use adult stem cells to replace the base layer of the retina and improve the sight of those with age-related macular degeneration.

Front cover of board book titled

Eye Conditions and Syndromes

A Board Book Showing Kids Wearing Glasses

This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.

graphic of US and research center locations

Health & Nutrition

Undiagnosed Diseases Network

The NIH has established an Undiagnosed Diseases Network to link research sites across the country and develop diagnoses and treatments for rare diseases.

Will Patch for Cake t-shirt

Eye Conditions and Syndromes

11 Super Fun Patching Resources to Make Patching Easy!

Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching...

CVI Teacher

Eye Conditions and Syndromes

CVI Teacher: Sharing Ideas About Cortical Visual Impairment

This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.

Eye health

Health & Nutrition

New Developments in Treatments for Blindness

There are several exciting new technologies designed to improve vision. Retinitas pigmentosa, macular degeneration and other eye issues have new treatments.

messy play

Feeding and Eating

Using Messy Play to Teach Self Feeding Skills

Play time is a great opportunity to practice daily living skills without the pressure of "working" on a skill. Here's an idea to use messy play as a time to...

Mosaic of iris of the eye made up of little pictures

Eye Conditions and Syndromes

My Retina Tracker: Building a Medical Database to Find Cures

My Retina Tracker is a resource from the Foundation Fighting Blindness that lets individuals manage their information around their retina disease, while researchers can curate the information to further treatment...

SAMi

Health & Nutrition, Sleep

SAMi: Sleep Monitor that Detects Seizures

The SAMi is a new device that lets parents monitor children with sleep issues while not having to be right in the room themselves. It’s an infrared device that is...