Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

Adorabelly g-tube covers

Feeding and Eating

Adorabelly Design: whimsical covers for g-tubes

These g-tube covers are unique and whimsical and can be custom-ordered. They're a great way to make your tube-fed child feel happy about their tube.

Eye Conditions and Syndromes

Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa

Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in...

closeup of eye

Eye Conditions and Syndromes

More News on Stem Cells and Blindness

Scientists in the UK have discovered a cache of stem cells in the eye that could lead to reversing blindness for those with age-related macular degeneration and retinitis pigmentosa. It's...

Genzyme supporting gene therapy research for childhood blindness

Eye Conditions and Syndromes

Gene therapy research for childhood blindness gets a boost from Genzyme

LCA-1 research is getting a boost from Genzyme with a $900,000 grant to pursue gene therapy. Dr. Shannon Boye has had success with animals in the lab and is looking...

Magnified vision of cell

Health & Nutrition

3D Printing Cells is a New Step in Finding a Cure for Blindness

Researchers are using 3D printers to create artificial retinal nerve cells. They hope this will lead to using this to replace damaged retinal cells and ultimately cure retinal blindness.

Brown circle of retinal tissue from stem cells

Eye Conditions and Syndromes

First Human Trial for Macular Degeneration

The first human trials in using home-grown stem cells to treat age-related macular degeneration took place recently in Japan. This could be a breakthrough for other therapies involving stem cells...

Happy young children eating

Feeding and Eating

Notube: Special Feeding Counseling for Children with Feeding Tubes

Notube is a company that provides online coaching on how to wean your child off of a feeding tube and onto eating orally. Their approach is clinically based and provides...

Orange stem cell

Eye Conditions and Syndromes

Next Step for Macular Degeneration: Human Trials

A Japanese ophthalmologist has invented a way to use adult stem cells to replace the base layer of the retina and improve the sight of those with age-related macular degeneration.

Front cover of board book titled

Eye Conditions and Syndromes

A Board Book Showing Kids Wearing Glasses

This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.

graphic of US and research center locations

Health & Nutrition

Undiagnosed Diseases Network

The NIH has established an Undiagnosed Diseases Network to link research sites across the country and develop diagnoses and treatments for rare diseases.

Will Patch for Cake t-shirt

Eye Conditions and Syndromes

11 Super Fun Patching Resources to Make Patching Easy!

Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching...

CVI Teacher

Eye Conditions and Syndromes

CVI Teacher: Sharing Ideas About Cortical Visual Impairment

This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.

Eye health

Health & Nutrition

New Developments in Treatments for Blindness

There are several exciting new technologies designed to improve vision. Retinitas pigmentosa, macular degeneration and other eye issues have new treatments.

messy play

Feeding and Eating

Using Messy Play to Teach Self Feeding Skills

Play time is a great opportunity to practice daily living skills without the pressure of "working" on a skill. Here's an idea to use messy play as a time to...

Mosaic of iris of the eye made up of little pictures

Eye Conditions and Syndromes

My Retina Tracker: Building a Medical Database to Find Cures

My Retina Tracker is a resource from the Foundation Fighting Blindness that lets individuals manage their information around their retina disease, while researchers can curate the information to further treatment...

SAMi

Health & Nutrition, Sleep

SAMi: Sleep Monitor that Detects Seizures

The SAMi is a new device that lets parents monitor children with sleep issues while not having to be right in the room themselves. It’s an infrared device that is...

multicolored pills

Eye Conditions and Syndromes

New Treatment for Leber’s Congenital Amaurosis (LCA)

Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!

Cornea shown enlarged

Eye Conditions and Syndromes

A Breakthrough in Growing Corneas

Researchers have figured out how to use adult stem cells to grow corneas in the lab. These can be used to treat a host of eye illnesses and injuries.

Contact Lens illuminated from behind on black

Eye Conditions and Syndromes

New Way to Deliver Glaucoma Medicine

Researchers have found a way to deliver glaucoma medicine via contact lenses, making it easier for users to continue treatment for their disease.

eye anatomy

Eye Conditions and Syndromes

Learn About the Eye

We'll show you all you need to know about the eye & how it works in simple language. You'll learn the basics about the eye so that you can have...

Smartphone that does eye exams

Health & Nutrition

There’s a Smartphone App that Does Eye Exams

An eye doctor in Kenya has invented a way to use smartphones to diagnose and treat blindness by bringing the technology to the patient.

2 kids with patches

Eye Conditions and Syndromes

Lil’ Victors for Kids who Patch

Lil' Victors carries clothing and other items that advise you to "keep calm and patch on," for when you want people to understand sight issues and why your baby is...

Up close image of a blue eye with wide pupil.

Health & Nutrition

Using Stem Cells to Restore Sight

Scientists are using stem cells to create a retina in a petri dish. It behaves exactly as an actual retina does, allowing for full experimentation and leading hopefully to restoring...

A model of the human brain displays placement of a responsive neurostimulator that can stop or reduce seizures in patients with epilepsy.

Health & Nutrition

New Treatment Stops Seizures Before They Start

There's a new way to deal with seizures that could revolutionize the lives of those who have them. It involves embedding a tiny computer in the skull of the patient...