Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

Mason, Thomas & Luke (not necessarily in that order)

Eye Conditions and Syndromes

Three Retinoblastoma-Cancer-Fighting Superheroes!

Triplets Thomas, Mason and Luke were all diagnosed with retinoblastoma when only about 12 weeks old. They are now battling this rare form of cancer at SickKids Hospital in Toronto....

Bear's shirt showing

Eye Conditions and Syndromes

Hi, I’m Helen. I have Cerebral Palsy.

Is this speech, Lesley talks about learning to imagine an accepting community and encourages her listeners to empathize with others while also acknowledging their own deep feelings.

Braille Text

Research Studies

Research Study on Leisure Reading Characteristics of Blind/Visually Impaired Youth

The Institute on Blindness at Louisiana Tech University is looking for participants for a research study on leisure reading in blind and visually impaired children.

a flower in focus

Eye Conditions and Syndromes

Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus

Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!

how gene therapy works

Eye Conditions and Syndromes

Gene Therapy Treatment for Choroideremia

Researchers at the Nuffield Laboratory of Ophthalmology at the University of Oxford in the U.K. are treating Choroideremia (CHM) with gene therapy. This treatment can be used to treat many...

Baby MEG

Health & Nutrition

New Technology to Localize Infant Seizures

Boston Children's Hospital is planning to launch a new infant magnetoencephalography (MEG) system this spring that will revolutionize what we know about infant brains and, more to the point, infant...

kids brushing teeth

Health & Nutrition

Brushing Teeth & Dental Hygiene for Disabled Kids

Find tips and tricks from parents of blind and visually impaired children about tooth brushing and dental hygiene!

My health passport

Health & Nutrition

My Health Passport

My Health Passport is a free downloadable file that allows you to present your child's medical information in a quick at-a-glance reference guide.

Health & Nutrition, Special Needs

Hospital Tips & Tricks: How to Prepare for a Long Stay at the Hospital with Your Special Needs Child

Here are practical suggestions from moms about how to prepare for a stay at the hospital. Find out what to pack, what to have in hand, who to connect with...

Kids' Brains at MIT logo

Research Studies

Brain Development in Kids Born Blind

MIT is conducting a research study on brain plasticity in children who are born blind. They are recruiting children between the ages of 4-14 who are legally blind and who...

Rods and cones in the retina

Eye Conditions and Syndromes

Building Retinas in the Laboratory

Researchers at Moorfields Eye Hospital and University College London say they have had success in mouse models actually building retinas in the laboratory using stem cells to create new photoreceptors....

eye doctor

Health & Nutrition

Next Step in Gene Therapy

Researchers at Berkeley Stem Cell Center at UC Berkeley have been working on creating a new way to get gene therapy to a patient's eye without invasive surgery.

diagram of how the retinal microchip works

Eye Conditions and Syndromes

Retinal Microchip Advances

There's been a lot of movement in the world of retinal microchips lately! Find out about the Argus II, wireless glasses and solar powered microchips!

eSight Eyewear

Eye Conditions and Syndromes

eSight Eyewear

eSight Eyewear is a new low vision assistive device that you wear. It is custom fit, runs on batteries and can bring clearer vision to near, far and mid-range tasks.

Mirielle in her sunglasses

Eye Conditions and Syndromes

Cocoons Sunglasses for Kids with Photophobia

Cocoons makes polarized sunglasses that fit over prescription glasses and are great for kids with who are also photophobic or highly sensitive to sunlight.


Eye Conditions and Syndromes

Preventing the Development of Deafness in Mice with Usher Syndrome

Researchers at Rosalind Franklin University of Medicine and Science have found a way to use a single dose of a small, synthetic RNA-like molecule, called an antisense oligonucleotide (ASO), to...

Argus II

Eye Conditions and Syndromes

FDA Approves Artificial Retina

The Argus II Retinal Prosthesis System is the first artificial retina (also called a bionic eye or retinal microchip) to be approved by the FDA in the United States.

Disease InfoSearch

Health & Nutrition

Disease InfoSearch

Disease InfoSearch connects healthcare providers, researchers and the general public with support groups, relevant and timely peer-reviewed articles, open clinical trials, and general disease information about thousands of genetic disorders.

Little boy in ball pit

Eye Conditions and Syndromes

Deaf-Blind Family Guide

The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness.

Will Patch for Cake shirt

Eye Conditions and Syndromes

Eye Power Kid’s Wear

Eye Power Kid's Wear creates adorable print T-shirts specially designed for kids who wear glasses or a patch!

Baby with Playtex Trainer Cup

Feeding and Eating

Playtex Twist ‘n Click Straw Trainer Cup

Shannon Austin wrote in to share a neat (and affordable) sippy cup find that has worked great for her daughter. This Playtex straw trainer teaches kids how to use a...

Beyond the Darkness

Eye Conditions and Syndromes

Beyond the Darkness: A Blog About Raising a Child with Retinopathy of Prematurity (ROP)

A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).

visual pathway

Eye Conditions and Syndromes

Visual Fields, Field Loss and Functional Vision Testing

The newest webcast from Perkins features Luisa Mayer, Ph.D., an internationally known specialist in visual field/functional vision testing.

My Passport screenshot

Health & Nutrition

Children’s Hospital Uses iPads to Enhance Patient’s Experience

Boston Children's Hospital is running a pilot program with inpatient care using a new app they've developed to help organize and facilitate communication between a patient's family and their doctors.