Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

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Eye Conditions and Syndromes

The National Organization for Albinism and Hypopigmentation (NOAH)

Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.

Ivan eating puffs

Development, Feeding and Eating

Picking Up Puffs: Working on Developmental Milestones One Step at a Time

We'll give you tips and ideas on how to set goals and teach your blind baby how to finger feed.

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Eye Conditions and Syndromes

Raising a Blind Child with Albinism

Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.

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Eye Conditions and Syndromes

DeafBlind Fact Sheets

This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.

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Health & Nutrition

Gene Reviews: Searchable Database of Genetic Disorders

GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.

baby with a bottle

Feeding and Eating

Make Your Own Bottle Holder!

Make a visually stimulating bottle holder for your blind baby that's simple to make and pretty to look at.

Tacey

Eye Conditions and Syndromes

Tacey’s Story: Surviving Retinoblastoma

Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.

making cake

Feeding and Eating

Learning in the Kitchen: Helping Your Blind Child Make Their Own Cake

Start a new tradition this year... Get your child in the kitchen and have them help you bake a cake! The smells and tastes are so yummy plus they'll get...

ERG

Eye Conditions and Syndromes

What’s an ERG?

If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...

graduates

Eye Conditions and Syndromes

LCA and Education

How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.