Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Research Studies
Research Study on Leisure Reading Characteristics of Blind/Visually Impaired Youth
The Institute on Blindness at Louisiana Tech University is looking for participants for a research study on leisure reading in blind and visually impaired children.
Eye Conditions and Syndromes
Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus
Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!
Eye Conditions and Syndromes
Gene Therapy Treatment for Choroideremia
Researchers at the Nuffield Laboratory of Ophthalmology at the University of Oxford in the U.K. are treating Choroideremia (CHM) with gene therapy. This treatment can be used to treat many...
Health & Nutrition
New Technology to Localize Infant Seizures
Boston Children's Hospital is planning to launch a new infant magnetoencephalography (MEG) system this spring that will revolutionize what we know about infant brains and, more to the point, infant...
Health & Nutrition
Brushing Teeth & Dental Hygiene for Disabled Kids
Find tips and tricks from parents of blind and visually impaired children about tooth brushing and dental hygiene!
Health & Nutrition
My Health Passport
My Health Passport is a free downloadable file that allows you to present your child's medical information in a quick at-a-glance reference guide.
Health & Nutrition, Special Needs
Hospital Tips & Tricks: How to Prepare for a Long Stay at the Hospital with Your Special Needs Child
Here are practical suggestions from moms about how to prepare for a stay at the hospital. Find out what to pack, what to have in hand, who to connect with...
Research Studies
Brain Development in Kids Born Blind
MIT is conducting a research study on brain plasticity in children who are born blind. They are recruiting children between the ages of 4-14 who are legally blind and who...
Eye Conditions and Syndromes
Building Retinas in the Laboratory
Researchers at Moorfields Eye Hospital and University College London say they have had success in mouse models actually building retinas in the laboratory using stem cells to create new photoreceptors....
Health & Nutrition
Next Step in Gene Therapy
Researchers at Berkeley Stem Cell Center at UC Berkeley have been working on creating a new way to get gene therapy to a patient's eye without invasive surgery.
Eye Conditions and Syndromes
Retinal Microchip Advances
There's been a lot of movement in the world of retinal microchips lately! Find out about the Argus II, wireless glasses and solar powered microchips!
Eye Conditions and Syndromes
eSight Eyewear
eSight Eyewear is a new low vision assistive device that you wear. It is custom fit, runs on batteries and can bring clearer vision to near, far and mid-range tasks.
Eye Conditions and Syndromes
Cocoons Sunglasses for Kids with Photophobia
Cocoons makes polarized sunglasses that fit over prescription glasses and are great for kids with who are also photophobic or highly sensitive to sunlight.
Eye Conditions and Syndromes
Preventing the Development of Deafness in Mice with Usher Syndrome
Researchers at Rosalind Franklin University of Medicine and Science have found a way to use a single dose of a small, synthetic RNA-like molecule, called an antisense oligonucleotide (ASO), to...
Eye Conditions and Syndromes
FDA Approves Artificial Retina
The Argus II Retinal Prosthesis System is the first artificial retina (also called a bionic eye or retinal microchip) to be approved by the FDA in the United States.
Health & Nutrition
Disease InfoSearch
Disease InfoSearch connects healthcare providers, researchers and the general public with support groups, relevant and timely peer-reviewed articles, open clinical trials, and general disease information about thousands of genetic disorders.
Eye Conditions and Syndromes
Deaf-Blind Family Guide
The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness.
Eye Conditions and Syndromes
Eye Power Kid’s Wear
Eye Power Kid's Wear creates adorable print T-shirts specially designed for kids who wear glasses or a patch!
Feeding and Eating
Playtex Twist ‘n Click Straw Trainer Cup
Shannon Austin wrote in to share a neat (and affordable) sippy cup find that has worked great for her daughter. This Playtex straw trainer teaches kids how to use a...
Eye Conditions and Syndromes
Beyond the Darkness: A Blog About Raising a Child with Retinopathy of Prematurity (ROP)
A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).
Eye Conditions and Syndromes
Visual Fields, Field Loss and Functional Vision Testing
The newest webcast from Perkins features Luisa Mayer, Ph.D., an internationally known specialist in visual field/functional vision testing.
Health & Nutrition
Children’s Hospital Uses iPads to Enhance Patient’s Experience
Boston Children's Hospital is running a pilot program with inpatient care using a new app they've developed to help organize and facilitate communication between a patient's family and their doctors.
Feeding and Eating
Ba Bottle Holder
The Ba Bottle Holder is designed to help babies with poor motor control hold on to their bottles by themselves and would be great for any kid who finds holding...
Health & Nutrition
Stem Cells, the Nobel Prize and Future Research
What does the Nobel Prize in Physiology or Medicine have to do with diseases of the retina? Maybe nothing, at first, but Dr Yamanaka's work with stem cells (specifically induced...