Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

My Passport screenshot

Health & Nutrition

Children’s Hospital Uses iPads to Enhance Patient’s Experience

Boston Children's Hospital is running a pilot program with inpatient care using a new app they've developed to help organize and facilitate communication between a patient's family and their doctors.

Ba Bottle Holder

Feeding and Eating

Ba Bottle Holder

The Ba Bottle Holder is designed to help babies with poor motor control hold on to their bottles by themselves and would be great for any kid who finds holding...

stem cells

Health & Nutrition

Stem Cells, the Nobel Prize and Future Research

What does the Nobel Prize in Physiology or Medicine have to do with diseases of the retina? Maybe nothing, at first, but Dr Yamanaka's work with stem cells (specifically induced...

A Team Approach to CVI in Schools

Eye Conditions and Syndromes

A Team Approach to CVI in Schools

This downloadable PDF explains what CVI is in very easy to follow terms and develops a program that teachers and therapists can use to best teach students with CVI.

Sketch of a bionic eye or retinal microchip

Eye Conditions and Syndromes

Bionic Vision Australia Working on Bionic Eye Implants

Bionic Vision Australia (BVA) announces the successful implantation of a bionic eye. BVA attached the device, which contains 24 electrodes that stimulate the retina's nerve cells, to a retina.

rat

Eye Conditions and Syndromes

Retinal Prosthetic Creates “Normal Vision” in Blind Mice

A new study restores normal vision in mice with diseased retinas using a new type of retinal prosthetic which relies on the use of the retina's code that communicates with...

two babies

Research Studies

Calling All Moms of Blind Kids!

Sonja Biggs is looking for mothers of blind children to participate in a study on school skills. Sonja would like to see how mothers prepare their blind children for school.

Abby smiling

Eye Conditions and Syndromes

Optic Nerve Hypoplasia (ONH): A Mother’s Perspective

LeAndra Lee writes about her daughter, Abigail, who is diagnosed with Optic Nerve Hypopalsia and Septo Optic Dysplasia. LeAndra explains what ONH is and how it affects Abigail.

United Healthcare Children's Foundation

Health & Nutrition

Medical Grants to Cover Health Care Treatments

The United Healthcare Children's Foundation is seeking grant applications from families in need of financial assistance to help pay for their child's health care treatments, services or equipment not covered...

Ivan getting an EEG

Health & Nutrition

What is an EEG Really Like?

If your child's neurologist has ordered an EEG you may be wondering what the test will be like and whether or not it will be painful or traumatic for your...

Seizure Sensor

Health & Nutrition

An EEG Watch?

Can a watch-like sensor replace the EEG? Researchers say that this watch can detect seizure activity by measuring sympathetically mediated electrodermal activity which has been suggested as containing enough information...

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia, Part 2

TVI Lisa LaDue answers readers' questions about O&M and TVI services and whether or not a visually impaired student should automatically be sat at the front of the classroom.

The Forever Fix: Gene Therapy and the Boy Who Saved It

Eye Conditions and Syndromes

The Forever Fix: Gene Therapy and the Boy Who Saved It

The Forever Fix is a new book about Corey Haas, a little boy born blind with LCA. The book recounts his experiences with genetic therapy and how the therapy was...

second sight

Eye Conditions and Syndromes

Artificial Retina Approved for Sale in Europe

Second Sight announces that their artificial retina (also known as a retinal microchip), the Argus II, is now available for public purchase in Europe.

looking at jellyfish

Eye Conditions and Syndromes

Little Bear Sees: Tips & Ideas for Kids with CVI

From the creators of the first app for kids with CVI, Tap-n-See Zoo, comes the Little Bear Sees blog! Here you'll find all sorts of fun ideas for activities and...

mom hugging baby

Research Studies

Research Study for Mothers of Blind Children

A graduate student in the Genetic Counseling Program at Brandeis University is looking for mothers to participate in a research study designed to explore how a mother feels while bonding...

Mrs. Amercia raising awareness about RP

Eye Conditions and Syndromes

Mrs. America Raises Awareness About Retinitis Pigmentosa

Watch this video with Mrs America on Fox News. She talks about RP and LCA and explains how we can help support exciting new research that may cure these diseases.

Q & A

Eye Conditions and Syndromes

Q&A with Ocularist Walter T. Tillman

Walter Tillman is an ocularist in Ocularist Pittsburgh. He talks about how he assesses children with anophthalmia/microphthalmia, how to choose conformers or prosthetics, and possible surgical options.

Jacalyn

Eye Conditions and Syndromes

A Letter to New Parents Living with Microphthalmia

Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low...

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia

TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.

Ella with her first pair of blue prostheic eyes

Eye Conditions and Syndromes

Ella’s Story: Raising a Child with Bilateral Anophthalmia

Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.

John Pitzen holding Ella

Eye Conditions and Syndromes

An Interview with John Pitzen about Bilateral Anophthalmia

MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.

AJ

Eye Conditions and Syndromes

Our Journey with Microphthalmia

Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.

Ivey

Eye Conditions and Syndromes

Your Baby has Anophthalmia

Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...