Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Health & Nutrition, Sleep
SAMi: Sleep Monitor that Detects Seizures
The SAMi is a new device that lets parents monitor children with sleep issues while not having to be right in the room themselves. It’s an infrared device that is...
Eye Conditions and Syndromes
New Treatment for Leber’s Congenital Amaurosis (LCA)
Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!
Eye Conditions and Syndromes
A Breakthrough in Growing Corneas
Researchers have figured out how to use adult stem cells to grow corneas in the lab. These can be used to treat a host of eye illnesses and injuries.
Eye Conditions and Syndromes
New Way to Deliver Glaucoma Medicine
Researchers have found a way to deliver glaucoma medicine via contact lenses, making it easier for users to continue treatment for their disease.
Eye Conditions and Syndromes
Learn About the Eye
We'll show you all you need to know about the eye & how it works in simple language. You'll learn the basics about the eye so that you can have...
Health & Nutrition
There’s a Smartphone App that Does Eye Exams
An eye doctor in Kenya has invented a way to use smartphones to diagnose and treat blindness by bringing the technology to the patient.
Eye Conditions and Syndromes
Lil’ Victors for Kids who Patch
Lil' Victors carries clothing and other items that advise you to "keep calm and patch on," for when you want people to understand sight issues and why your baby is...
Health & Nutrition
Using Stem Cells to Restore Sight
Scientists are using stem cells to create a retina in a petri dish. It behaves exactly as an actual retina does, allowing for full experimentation and leading hopefully to restoring...
Health & Nutrition
New Treatment Stops Seizures Before They Start
There's a new way to deal with seizures that could revolutionize the lives of those who have them. It involves embedding a tiny computer in the skull of the patient...
Feeding and Eating
Liftware Adaptive Cutlery
Adaptive cutlery counteracts hand tremors to make eating easier and less stressful. It was developed by a group of scientists and engineers who wanted to improve overall quality of life...
Feeding and Eating, Health & Nutrition
Maintaining a High-Calorie Diet for Special Needs Kids
Many special needs children are placed on high-calorie diets. Here are some tips on how to manage a high-calorie diet with ideas for foods and calorie enhancers.
Eye Conditions and Syndromes
Optic Nerve Hypoplasia (ONH) Research at Children’s Hospital Los Angeles
Dr. Mark Borchert at Children's Hospital Los Angeles directs the world's largest study in optic nerve hypoplasia (ONH).
Eye Conditions and Syndromes
Three Retinoblastoma-Cancer-Fighting Superheroes!
Triplets Thomas, Mason and Luke were all diagnosed with retinoblastoma when only about 12 weeks old. They are now battling this rare form of cancer at SickKids Hospital in Toronto....
Eye Conditions and Syndromes
Hi, I’m Helen. I have Cerebral Palsy.
Is this speech, Lesley talks about learning to imagine an accepting community and encourages her listeners to empathize with others while also acknowledging their own deep feelings.
Research Studies
Research Study on Leisure Reading Characteristics of Blind/Visually Impaired Youth
The Institute on Blindness at Louisiana Tech University is looking for participants for a research study on leisure reading in blind and visually impaired children.
Eye Conditions and Syndromes
Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus
Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!
Eye Conditions and Syndromes
Gene Therapy Treatment for Choroideremia
Researchers at the Nuffield Laboratory of Ophthalmology at the University of Oxford in the U.K. are treating Choroideremia (CHM) with gene therapy. This treatment can be used to treat many...
Health & Nutrition
New Technology to Localize Infant Seizures
Boston Children's Hospital is planning to launch a new infant magnetoencephalography (MEG) system this spring that will revolutionize what we know about infant brains and, more to the point, infant...
Health & Nutrition
Brushing Teeth & Dental Hygiene for Disabled Kids
Find tips and tricks from parents of blind and visually impaired children about tooth brushing and dental hygiene!
Health & Nutrition
My Health Passport
My Health Passport is a free downloadable file that allows you to present your child's medical information in a quick at-a-glance reference guide.
Health & Nutrition, Special Needs
Hospital Tips & Tricks: How to Prepare for a Long Stay at the Hospital with Your Special Needs Child
Here are practical suggestions from moms about how to prepare for a stay at the hospital. Find out what to pack, what to have in hand, who to connect with...
Research Studies
Brain Development in Kids Born Blind
MIT is conducting a research study on brain plasticity in children who are born blind. They are recruiting children between the ages of 4-14 who are legally blind and who...
Eye Conditions and Syndromes
Building Retinas in the Laboratory
Researchers at Moorfields Eye Hospital and University College London say they have had success in mouse models actually building retinas in the laboratory using stem cells to create new photoreceptors....
Health & Nutrition
Next Step in Gene Therapy
Researchers at Berkeley Stem Cell Center at UC Berkeley have been working on creating a new way to get gene therapy to a patient's eye without invasive surgery.