Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

ROPARD Logo

Eye Conditions and Syndromes

The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)

ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.

purple eye

Eye Conditions and Syndromes

Macular Degeneration Foundation

The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.

NDBC logo

Eye Conditions and Syndromes

National Consortium on Deaf-Blindness (DB-Link)

NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.

ANN Info

Eye Conditions and Syndromes

American Nystagmus Network

The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.

Ivan eating a nectarine

Feeding and Eating

Teaching the Whole Concept: Learning about where our food comes from

Learning whole concepts can be difficult and take some time for children with vision impairments. Rather than trying to teach everything at once, give your child time to explore his...

surgeons performing eye surgery

Health & Nutrition

Can I get an eye transplant for my blind child?

Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...

rods and cones in the human eye

Eye Conditions and Syndromes

Rods & Cones Transplanted through Stem Cells

Following the successful transplantation of cone cells, a research team from University College London has successfully transplanted rod cells, essential for peripheral and night vision. Cells were injected directly into...

artificial retina

Eye Conditions and Syndromes

The Bio-Retina

NanoRetina of Israel has developed a bionic retinal implant to replace natural photoreceptors, and expects to begin testing within the U.S. in 2013.

medical papers

Eye Conditions and Syndromes

LCA and Kidney Health

LCA can sometimes be associated with kidney disorders. We've put together a list of tests that should make sure you or your child's kidneys are in perfect working order.

CSF Logo

Eye Conditions and Syndromes

CHARGE Syndrome Foundation

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.

Health & Nutrition

Foundation Fighting Blindness

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by blindness.

TGF logo

Eye Conditions and Syndromes

The Glaucoma Foundation

The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.

ONH/SOD Logo

Eye Conditions and Syndromes

ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)

FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.

Stargadts banner

Eye Conditions and Syndromes

Stargardts Disease

Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who...

UMDF Logo

Eye Conditions and Syndromes

The United Mitochondrial Disease Foundation

United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

Eye Conditions and Syndromes

What’s genetic testing for LCA?

If you are considering genetic testing to determine the gene causing your child's LCA, you probably have lots of questions about the test as well as the results. We'll try...

Juice Bear

Feeding and Eating

Make Your Own Sippy Cup to Help Teach Straw Drinking

Learn how to make a small sippy cup out of household items that is easy for your child to hold and impossible to break!

cilia

Health & Nutrition

What are Ciliopathies and How are they Related to Blindness?

The source of retinal pathologies like that associated with Joubert's Syndrome may originate in the cilia of cells. Scientists at UC-San Diego report their findings in this Health Sciences update.

Bionic eye

Research Studies

Retinal Microchip Trials

A British man with retinitis pigmentosa has test driven the bionic eye, a set of implanted receivers that send impulses through the optic nerve and into the brain. Thirty-five test...

retinal implant

Health & Nutrition

Retinal Implants and Visual Cortex Plasticity

The Boston Retinal Implant Project unveiled a prototype prosthetic for people with retinitis pigmentosa (RP) and macular degeneration. This post links to a New York Times article which also discusses...

Martin Jones

Health & Nutrition

Tooth Implant Restores Sight

An innovation in lens surgery uses a patient’s tooth to hold an optical lens in place. Within 2 weeks of completing the entire procedure, Martin Jones of England was able...

People using brainport

Health & Nutrition

BrainPort Allows Blind Users to “See” Through Their Tongue

BrainPort Vision is a prosthetic device that uses electrical stimulation of the tongue to provide spatial information to users who are blind or who have vision limited to light perception....

GSFPB Logo

Eye Conditions and Syndromes

Glaucoma Service Foundation to Prevent Blindness

The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.

Deafblindness

Eye Conditions and Syndromes

A-Z to Deafblindness

This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.