Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

Quick View example

Health & Nutrition

Quick View Medical Records

Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.


Eye Conditions and Syndromes

New Treatment for LCA in Early Development

Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.

Eye doctor illustration

Eye Conditions and Syndromes

American Society of Ocularists

The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).

Aniridia Foundation International members

Eye Conditions and Syndromes

Aniridia Foundation International

aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...

Using the plate-mate

Feeding and Eating

My Plate-Mate Adaptive Feeding Aid

My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...

eye and light

Eye Conditions and Syndromes

Achromatopisia Network

An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.

Stickler Syndrome logo

Eye Conditions and Syndromes

Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...

Health & Nutrition

OMIM: Searchable Database of Genetic Disorders

Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.

NORD logo

Health & Nutrition

National Organization for Rare Diseases (NORD)

NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Retina in a test tube

Eye Conditions and Syndromes, Health & Nutrition

Japanese Researchers Grow a Retina in a Test Tube

Japanese researchers have used embryonic stem cells to grow retinas in a test tube.

Artificial retina

Eye Conditions and Syndromes, Health & Nutrition

More Artificial Retina News

Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.


Eye Conditions and Syndromes

Digital Journal of Ophthalmology

The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.


Eye Conditions and Syndromes

The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)

ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.

purple eye

Eye Conditions and Syndromes

Macular Degeneration Foundation

The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.

NDBC logo

Eye Conditions and Syndromes

National Consortium on Deaf-Blindness (DB-Link)

NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.

ANN Info

Eye Conditions and Syndromes

American Nystagmus Network

The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.

Ivan eating a nectarine

Feeding and Eating

Teaching the Whole Concept: Learning about where our food comes from

Learning whole concepts can be difficult and take some time for children with vision impairments. Rather than trying to teach everything at once, give your child time to explore his...

surgeons performing eye surgery

Eye Conditions and Syndromes, Visual Impairment

Can I get an eye transplant for my blind child?

Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...

rods and cones in the human eye

Eye Conditions and Syndromes

Rods & Cones Transplanted through Stem Cells

Following the successful transplantation of cone cells, a research team from University College London has successfully transplanted rod cells, essential for peripheral and night vision. Cells were injected directly into...

artificial retina

Eye Conditions and Syndromes

The Bio-Retina

NanoRetina of Israel has developed a bionic retinal implant to replace natural photoreceptors, and expects to begin testing within the U.S. in 2013.

medical papers

Eye Conditions and Syndromes

LCA and Kidney Health

LCA can sometimes be associated with kidney disorders. We've put together a list of tests that should make sure you or your child's kidneys are in perfect working order.

CSF Logo

Eye Conditions and Syndromes

CHARGE Syndrome Foundation

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.

TGF logo

Eye Conditions and Syndromes

The Glaucoma Foundation

The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.


Eye Conditions and Syndromes

ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)

FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.