Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Health & Nutrition
Quick View Medical Records
Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.
Eye Conditions and Syndromes
New Treatment for LCA in Early Development
Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.
Eye Conditions and Syndromes
American Society of Ocularists
The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).
Eye Conditions and Syndromes
Aniridia Foundation International
aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...
Feeding and Eating
My Plate-Mate Adaptive Feeding Aid
My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...
Eye Conditions and Syndromes
Achromatopisia Network
An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
Eye Conditions and Syndromes
Stickler Syndrome
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...
Health & Nutrition
OMIM: Searchable Database of Genetic Disorders
Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.
Health & Nutrition
National Organization for Rare Diseases (NORD)
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Eye Conditions and Syndromes, Health & Nutrition
Japanese Researchers Grow a Retina in a Test Tube
Japanese researchers have used embryonic stem cells to grow retinas in a test tube.
Eye Conditions and Syndromes, Health & Nutrition
More Artificial Retina News
Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.
Eye Conditions and Syndromes
Digital Journal of Ophthalmology
The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.
Eye Conditions and Syndromes
The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)
ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.
Eye Conditions and Syndromes
Macular Degeneration Foundation
The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.
Eye Conditions and Syndromes
National Consortium on Deaf-Blindness (DB-Link)
NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.
Eye Conditions and Syndromes
American Nystagmus Network
The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.
Feeding and Eating
Teaching the Whole Concept: Learning about where our food comes from
Learning whole concepts can be difficult and take some time for children with vision impairments. Rather than trying to teach everything at once, give your child time to explore his...
Eye Conditions and Syndromes, Visual Impairment
Can I get an eye transplant for my blind child?
Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...
Eye Conditions and Syndromes
Rods & Cones Transplanted through Stem Cells
Following the successful transplantation of cone cells, a research team from University College London has successfully transplanted rod cells, essential for peripheral and night vision. Cells were injected directly into...
Eye Conditions and Syndromes
The Bio-Retina
NanoRetina of Israel has developed a bionic retinal implant to replace natural photoreceptors, and expects to begin testing within the U.S. in 2013.
Eye Conditions and Syndromes
LCA and Kidney Health
LCA can sometimes be associated with kidney disorders. We've put together a list of tests that should make sure you or your child's kidneys are in perfect working order.
Eye Conditions and Syndromes
CHARGE Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.
Eye Conditions and Syndromes
The Glaucoma Foundation
The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.
Eye Conditions and Syndromes
ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.