Health & Nutrition
Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind
Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies
Eye Conditions and Syndromes
Stargardts Disease
Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who...
Eye Conditions and Syndromes
The United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Eye Conditions and Syndromes, Visual Impairment
What’s genetic testing for LCA?
If you are considering genetic testing to determine the gene causing your child's LCA, you probably have lots of questions about the test as well as the results. We'll try...
Feeding and Eating
Make Your Own Sippy Cup to Help Teach Straw Drinking
Learn how to make a small sippy cup out of household items that is easy for your child to hold and impossible to break!
Eye Conditions and Syndromes
What are Ciliopathies and How are they Related to Blindness?
The source of retinal pathologies like that associated with Joubert's Syndrome may originate in the cilia of cells. Scientists at UC-San Diego report their findings in this Health Sciences update.
Research Studies
Retinal Microchip Trials
A British man with retinitis pigmentosa has test driven the bionic eye, a set of implanted receivers that send impulses through the optic nerve and into the brain. Thirty-five test...
Eye Conditions and Syndromes, Health & Nutrition
Retinal Implants and Visual Cortex Plasticity
The Boston Retinal Implant Project unveiled a prototype prosthetic for people with retinitis pigmentosa (RP) and macular degeneration. This post links to a New York Times article which also discusses...
Eye Conditions and Syndromes, Health & Nutrition
Tooth Implant Restores Sight
An innovation in lens surgery uses a patient’s tooth to hold an optical lens in place. Within 2 weeks of completing the entire procedure, Martin Jones of England was able...
Eye Conditions and Syndromes, Health & Nutrition
BrainPort Allows Blind Users to “See” Through Their Tongue
BrainPort Vision is a prosthetic device that uses electrical stimulation of the tongue to provide spatial information to users who are blind or who have vision limited to light perception....
Eye Conditions and Syndromes
Glaucoma Service Foundation to Prevent Blindness
The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.
Eye Conditions and Syndromes
A-Z to Deafblindness
This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.
Feeding and Eating
Time to Eat! Our favorite meal-time products that make feeding babies & toddlers easier
The secret to successful mealtime may be in the utensils! We review and recommend the best place settings, snack storage, and bibs that support kids with disabilities as they develop...
Feeding and Eating
The First Years Booster Seat
The First Years Booster Seat is the best seat for children. Compact, easy to set up, and you can take it anywhere!
Eye Conditions and Syndromes
The National Organization for Albinism and Hypopigmentation (NOAH)
Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.
Development, Feeding and Eating
Picking Up Puffs: Working on Developmental Milestones One Step at a Time
We'll give you tips and ideas on how to set goals and teach your blind baby how to finger feed.
Eye Conditions and Syndromes, Visual Impairment
Raising a Blind Child with Albinism
Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.
Eye Conditions and Syndromes
DeafBlind Fact Sheets
This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.
Health & Nutrition
Gene Reviews: Searchable Database of Genetic Disorders
GeneReviews are expert-authored, peer-reviewed, current disease descriptions that apply genetic testing to the diagnosis, management, and genetic counseling of patients and families with specific inherited conditions.
Feeding and Eating
Make Your Own Bottle Holder!
Make a visually stimulating bottle holder for your blind baby that's simple to make and pretty to look at.
Eye Conditions and Syndromes, Visual Impairment
Tacey’s Story: Surviving Retinoblastoma
Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.
Eye Conditions and Syndromes
What’s an ERG?
If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...
Health & Nutrition
Excited About Stem Cells!
We're excited about the new embryonic stem cell therapy and its promise to regrow the damaged retina. Learn more about this ongoing research and how it might affect blindness.
Eye Conditions and Syndromes, Visual Impairment
LCA and Education
How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.