Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

Q & A

Eye Conditions and Syndromes, Visual Impairment

Ask the TVI about Anophthalmia and Microphthalmia

TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.

Ella with her first pair of blue prostheic eyes

Eye Conditions and Syndromes, Visual Impairment

Ella’s Story: Raising a Child with Bilateral Anophthalmia

Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.

John Pitzen holding Ella

Eye Conditions and Syndromes, Visual Impairment

An Interview with John Pitzen about Bilateral Anophthalmia

MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.


Eye Conditions and Syndromes, Visual Impairment

Our Journey with Microphthalmia

Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.


Eye Conditions and Syndromes, Visual Impairment

Your Baby has Anophthalmia

Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...

Skylar Covich

Eye Conditions and Syndromes, Visual Impairment

Dear parents of young children with LCA

Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with...

Quick View example

Health & Nutrition

Quick View Medical Records

Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.


Eye Conditions and Syndromes

New Treatment for LCA in Early Development

Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.

Eye doctor illustration

Eye Conditions and Syndromes

American Society of Ocularists

The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).

Aniridia Foundation International members

Eye Conditions and Syndromes

Aniridia Foundation International

aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...

Using the plate-mate

Feeding and Eating

My Plate-Mate Adaptive Feeding Aid

My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...

eye and light

Eye Conditions and Syndromes

Achromatopisia Network

An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.

Stickler Syndrome logo

Eye Conditions and Syndromes

Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...

Health & Nutrition

OMIM: Searchable Database of Genetic Disorders

Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.

NORD logo

Health & Nutrition

National Organization for Rare Diseases (NORD)

NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Retina in a test tube

Eye Conditions and Syndromes, Health & Nutrition

Japanese Researchers Grow a Retina in a Test Tube

Japanese researchers have used embryonic stem cells to grow retinas in a test tube.

Artificial retina

Eye Conditions and Syndromes, Health & Nutrition

More Artificial Retina News

Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.


Eye Conditions and Syndromes

Digital Journal of Ophthalmology

The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.


Eye Conditions and Syndromes

The Association for Retinopathy of Prematurity and Related Diseases (ROPARD)

ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.

purple eye

Eye Conditions and Syndromes

Macular Degeneration Foundation

The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.

NDBC logo

Eye Conditions and Syndromes

National Consortium on Deaf-Blindness (DB-Link)

NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.

ANN Info

Eye Conditions and Syndromes

American Nystagmus Network

The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.

Ivan eating a nectarine

Feeding and Eating

Teaching the Whole Concept: Learning about where our food comes from

Learning whole concepts can be difficult and take some time for children with vision impairments. Rather than trying to teach everything at once, give your child time to explore his...

surgeons performing eye surgery

Eye Conditions and Syndromes, Visual Impairment

Can I get an eye transplant for my blind child?

Sarah J. Blake discusses the use of the term "transplant" in speaking about eyes. She explains what is and is not possible and provides some clear explanation of how corneas...