Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

looking at jellyfish

Eye Conditions and Syndromes

Little Bear Sees: Tips & Ideas for Kids with CVI

From the creators of the first app for kids with CVI, Tap-n-See Zoo, comes the Little Bear Sees blog! Here you'll find all sorts of fun ideas for activities and...

mom hugging baby

Research Studies

Research Study for Mothers of Blind Children

A graduate student in the Genetic Counseling Program at Brandeis University is looking for mothers to participate in a research study designed to explore how a mother feels while bonding...

Mrs. Amercia raising awareness about RP

Eye Conditions and Syndromes

Mrs. America Raises Awareness About Retinitis Pigmentosa

Watch this video with Mrs America on Fox News. She talks about RP and LCA and explains how we can help support exciting new research that may cure these diseases.

Q & A

Eye Conditions and Syndromes

Q&A with Ocularist Walter T. Tillman

Walter Tillman is an ocularist in Ocularist Pittsburgh. He talks about how he assesses children with anophthalmia/microphthalmia, how to choose conformers or prosthetics, and possible surgical options.

Jacalyn

Eye Conditions and Syndromes

A Letter to New Parents Living with Microphthalmia

Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low...

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia

TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.

Ella with her first pair of blue prostheic eyes

Eye Conditions and Syndromes

Ella’s Story: Raising a Child with Bilateral Anophthalmia

Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.

John Pitzen holding Ella

Eye Conditions and Syndromes

An Interview with John Pitzen about Bilateral Anophthalmia

MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.

AJ

Eye Conditions and Syndromes

Our Journey with Microphthalmia

Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.

Ivey

Eye Conditions and Syndromes

Your Baby has Anophthalmia

Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same...

Skylar Covich

Eye Conditions and Syndromes, Parenting

Dear parents of young children with LCA

Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with...

Quick View example

Health & Nutrition

Quick View Medical Records

Learn how to create a Quick View for your child's medical records. The concept is to create a one-page visual aid that you can give to medical professionals.

pills

Eye Conditions and Syndromes

New Treatment for LCA in Early Development

Learn about ongoing research and studies into an oral medication, QLT091001, designed to restore vision in patients with certain types of LCA and RP genetic mutations.

Eye doctor illustration

Eye Conditions and Syndromes

American Society of Ocularists

The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).

Aniridia Foundation International members

Eye Conditions and Syndromes

Aniridia Foundation International

aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...

Using the plate-mate

Feeding and Eating

My Plate-Mate Adaptive Feeding Aid

My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...

eye and light

Eye Conditions and Syndromes

Achromatopisia Network

An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.

Stickler Syndrome logo

Eye Conditions and Syndromes

Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...

Health & Nutrition

OMIM: Searchable Database of Genetic Disorders

Online Mendelian Inheritance in Man (OMIM) is a comprehensive, authoritative, and timely compendium of human genes and genetic phenotypes.

NORD logo

Health & Nutrition

National Organization for Rare Diseases (NORD)

NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Retina in a test tube

Health & Nutrition

Japanese Researchers Grow a Retina in a Test Tube

Japanese researchers have used embryonic stem cells to grow retinas in a test tube.

Prevent Blindness and Children's Vision

Health & Nutrition

Prevent Blindness America

Founded in 1908, Prevent Blindness America is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.

Artificial retina

Health & Nutrition

More Artificial Retina News

Europe has just approved a device developed by Second Sight Medical and they are working on getting FDA approval in the US.

DJO

Eye Conditions and Syndromes

Digital Journal of Ophthalmology

The DJO is a premier, peer-reviewed ophthalmic journal dedicated to the dissemination of information over the World Wide Web.