Health & Nutrition

Find advice on how to manage doctor visits and hospital stays, learn how to teach self-feeding skills and discover new medical treatments and research opportunities for children who are blind

Filter by: Eye Conditions and Syndromes, Feeding and Eating, Research Studies

retina scan

Eye Conditions and Syndromes

Optogenetics: A New Way to Restore Sight

Optogenetics looks at restoring sight to patients with retinal damage in a whole new way by focusing on transforming the function of ganglion cells.

Brain Plasticity

Health & Nutrition

Brain Plasticity News in Gene Therapy

Researchers prove that "retina-brain pathways can be established in LCA patients," even after decades of near blindness and these pathways are strengthened with use after the retina has been treated.

Shelby in her WonderBaby T-Shirt

Eye Conditions and Syndromes, Special Needs

Why I Loved Attending the CHARGE Conference

I was nervous about attending my first CHARGE conference, but I am so happy that I did! It was wonderful! You should attend a family conference about your child's diagnosis...

Ivan using an EazyHold with a mixing spoon

Feeding and Eating, Fine and Gross Motor, Product Reviews

EazyHold: Grip Assist Strap

EazyHold is a simple grip assist strap that easily attaches to objects enabling kids with limited grip strength to accomplish daily living skills.


Health & Nutrition

Gene Therapy Experts Meet to Exchange Knowledge

Top researchers reported positive findings on clinic trials of gene therapy for people with LCA, Usher Syndrome, Stargardt disease, among many others.

eye detail with ONH

Health & Nutrition

Investigating the Missing Link in Nerve Regeneration

The ability to make a human nerve regenerate successfully (as with the ability to communicate effectively with the brain) could help cure a number of diseases and injuries, including visual...

futuristic eye

Eye Conditions and Syndromes, Research Studies

Discovering New Technology for Children and Adults with Severe Retinal Blinding Diseases

Harvard is seeking information about people with severe early onset retinal disease. This information will inform the design of a new technology that has the potential to help people with...

G-Tube Belt

Feeding and Eating

Made with Love 213: G-Tube Belts, Feeding Pump Packets & More

Handmade Clothing, Feeding Tube Accessories, Clothing Accessories, Hair accessories, and Baby gear.


Eye Conditions and Syndromes

Genetic Mutation May Cause Some forms of Anophthalmia/ Microphthalmia

Researchers have found a genetic mutation that explains why some children are born without eyes (anophthalmia) or with small eyes (microphthalmia).

Visual Code for treating Blindness

Eye Conditions and Syndromes

The Visual Code That May Treat Blindness

New treatment allows visual information to bypass damaged retina cells and successfully reach the brain where it can be processed.

baby eating

Feeding and Eating

10 Things You Should Know about Feeding Therapy

Frienship Circle's article on feeding therapy includes where to find help, assessment and therapy, as well as the family dynamics of it all, and the big one - patience!

A little girl with her hand on a light board with colorful shapes

Eye Conditions and Syndromes

CVI on APH: The Conversation Continues

A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).

DNA double helix

Eye Conditions and Syndromes

New Gene for LCA Discovered, PNPLA6

The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.

paper heart on background of pebbles

Eye Conditions and Syndromes

Creating a new Scleral Shell at the Ocularist

This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!

Boon Snug

Feeding and Eating

Boon Snug Sippy Cups and Straw Cups

Cool cup lids make any adult glass into a spill-proof glass for kids. Just snap on the lid, add a straw and you're ready to go!

lime green divided dish on mat

Feeding and Eating

Ez Pz: Easy clean dish and mat in one

A divided dish and table mat in one, these silicone plates are easy to stack, store and clean, and come in all sorts of cool colors.

cells, DNA, retinal implants montage

Health & Nutrition, Visual Impairment

Top Medical Breakthroughs in Vision in 2014

There have been a lot of medical advances in curing blindness in the past 12 months. Read about the most exciting breakthroughs in gene therapy, stem cells, artificial retinas and...

Embrace Watches

Health & Nutrition

A watch that warns about epileptic seizures

Stay on top of epileptic seizures with this sleek, contemporary wristwatch that detects subtle nerve movements that indicate a seizure is happening.

Adorabelly g-tube covers

Feeding and Eating

Adorabelly Design: whimsical covers for g-tubes

These g-tube covers are unique and whimsical and can be custom-ordered. They're a great way to make your tube-fed child feel happy about their tube.

Gizmonix Visor

Assistive Technology, Eye Conditions and Syndromes

New Gadget Addresses Tunnel Vision

There's a company that's working on a visor to help those with tunnel vision to see the full picture of what they could see without tunnel vision. It's still in...

Eye Conditions and Syndromes

Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa

Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in...

closeup of eye

Eye Conditions and Syndromes

More News on Stem Cells and Blindness

Scientists in the UK have discovered a cache of stem cells in the eye that could lead to reversing blindness for those with age-related macular degeneration and retinitis pigmentosa. It's...

Genzyme supporting gene therapy research for childhood blindness

Eye Conditions and Syndromes

Gene therapy research for childhood blindness gets a boost from Genzyme

LCA-1 research is getting a boost from Genzyme with a $900,000 grant to pursue gene therapy. Dr. Shannon Boye has had success with animals in the lab and is looking...

Magnified vision of cell

Health & Nutrition, Visual Impairment

3D Printing Cells is a New Step in Finding a Cure for Blindness

Researchers are using 3D printers to create artificial retinal nerve cells. They hope this will lead to using this to replace damaged retinal cells and ultimately cure retinal blindness.