Joubert Syndrome Foundation

Written by Amber Bobnar
Updated on January 24, 2022
Joubert Syndrome Foundation Logo

https://jsrdf.org

The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.

The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The Joubert Syndrome & Related Disorders Foundation is a nonprofit organization.

Written by Amber Bobnar
Updated on January 24, 2022

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