Joubert Syndrome Foundation
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.
The Joubert Syndrome & Related Disorders Foundation plays an important role in educating physicians and their support teams as well as increasing public awareness. The Joubert Syndrome & Related Disorders Foundation is a nonprofit organization.
It’s natural for special needs parents to go above and beyond for their children, but we need to remember that it's important to take a break as well.
Special Needs, Support
What can you do when your grandchild is born with a disability? Here are tips to help you relate to your family and give them the support they need.
The Council of Citizens with Low Vision International (CCLVI) is dedicated to providing information and tips to help you live well with vision loss.