CaringCalm.org

  • Home
  • About
  • Contact Us
  • All Topics
    • Adoption
    • Advocacy
    • Assistive Technology
    • Behavior
    • Braille and Literacy
    • Communication
    • Conferences and Fundraising
    • Eye Conditions and Syndromes
    • Feeding and Eating
    • Fine and Gross Motor
    • Giveaways
    • Growth and Development
    • Helpful Organizations
    • Holiday Crafts and Ideas
    • IEPs and Education
    • iPad Apps and Accessibility
    • Light Play
    • Math and Science
    • Medicine
    • Music Play
    • Orientation and Mobility
    • Parenting
    • Research Studies
    • Schools for the Blind
    • Sensory Activities
    • Sleep Solutions
    • Support
    • Tactile Art
    • Toys and Recreation

10 Things you feel when you’re considering brain surgery for your child

 

Of course this is not an exhaustive list, but this pretty much sums up how I’ve been feeling. If you are looking at the possibility of brain surgery for your child with epilepsy, what thoughts and concerns have plagued you?

  1. Utter despair that it’s come to this, that nothing else has worked. How can this be the only option we have left?
  2.  

  3. Real hope that this might actually be the answer. Maybe nothing has worked up until this point, but maybe this is the thing we’ve been working up to this whole time.
  4.  

  5. Fear that we’re too late. Why did we take so long thinking about this?
  6.  

  7. Anxious that things aren’t moving fast enough. Surgery should have been yesterday!
  8.  

  9. Anxious that things are moving too fast. I can’t process everything that is happening.
  10.  

  11. Total and complete inadequacy. I don’t understand half the things I read and if there was one time in my life that I needed to understand, this would be it.
  12.  

  13. Fear that I’ve not done enough. Maybe I should research more? Oh wait, then there’s also #3.
  14.  

  15. The desire to protect my child from all harm, including someone opening up his skull. The irrational feeling that I should just run away with him to a safe place where he will be healthy and no one will need to perform surgery. Where is this place?
  16.  

  17. The lack of focus for anything else in life. Dinner? Dishes? With all due respect, we’re discussing brain surgery here. Dishes can wait.
  18.  

  19. Fear that we’ve gone too far. Maybe we don’t need surgery. Not really. Maybe everything is fine the way it is? Am I overreacting to these seizures by thinking about surgery?

And the most pervasive feeling of all: That no mother should ever be placed in a position to have to decide whether or not her child’s head should be cut into and his brain sliced open. Can someone else please take this burden from me?

 
10 Things you feel when you're considering brain surgery for your child
 

Oct 20, 2017Amber Bobnar
What are your thoughts?

When my family accused me of using my special needs child as an excuseWin a free download of EDA PLAY PAULI and EDA PLAY ELIS
You Might Also Like
How one tiny fish may help us find a cure for blindness
The search for a treatment for LCA10-CEP290
Amber Bobnar

I'm mom to Ivan and founder of WonderBaby.org

3 years ago Medicine
4284
Find us on…

Facebook Pinterest Twitter Instagram


How to organize your IEP paperwork
Most Popular Posts
Ivan with his touch book

Make Your Own Touch Book!

16788
A stubborn toddler doing potty training

How to Potty Train a Stubborn Toddler

14697
Ivan playing on his iPad

5 Ways to Get a Free iPad for Your Special Needs Child!

13332
braille blocks, puzzles and buttons

25 Braille Toys for Kids Who are Blind

12662
sleeping Ivan

Help! My Baby Won’t Sleep!

11108

About
WonderBaby.org

WonderBaby.org is dedicated to helping parents of young children with visual impairments as well as children with multiple disabilities. Learn more.

Keep in Touch

Contacting WonderBaby.org is easy! Just send a message to the email below or reach out through social media. Hope to hear from you soon!

Facebook Pinterest Twitter Instagram

Email: help@wonderbaby.org

Learn More

Learn more about our family, our website and how you can become part of the WonderBaby.org team!

  • Our Story
  • Terms of Use
  • Privacy Policy
  • WonderBaby.org Printable Flyer
  • Advertise with Us
  • Accessibility Options
Translations

At WonderBaby.org we are here to support parents and caregivers of young children who are blind all over the world!

  • Arabic Resources: مصادر عربية
  • Spanish Resources: Recursos en Español
  • Dutch Resources: Informatie in het Nederlands

Learn more about our translations.

© 2006-2020 WonderBaby.org • PO Box 682 Watertown MA 02471 USA