Stickler Syndrome

Stickler Syndrome logo

https://www.sticklers.org/

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting a pen pal group for all ages.

Stickler Involved People publishes a quarterly newsletter, Stickler Involved People Newsletter, at no cost to members, and a brochure, “Strickler Syndrome–What You Need to Know First.” They have a bibliography of articles regarding the syndrome that is available. You can contact them for a list of articles and to obtain a particular article.


Related Posts

Mother and daughter looking at tablet.

Eye Conditions and Syndromes

Does Screen Time Affect Kids’ Vision?

Too much screen time can affect kids’ vision by causing eye strain, blurred vision, dry eyes, and even nearsightedness in children and adolescents.

Doctor giving the child new glasses for her vision.

Eye Conditions and Syndromes, Support, Visual Impairment

Coping with a Diagnosis: Emotional Support for Families with Visually Impaired Children

Families with emotional support are more resilient. Learn how to establish emotional support with peers, professionals, and the community to help your family thrive.

Amanda smiling.

Eye Conditions and Syndromes

Finding Joy and Strength in Raising a Child with Anophthalmia

When raising a child with anophthalmia, be patient, be kind to yourself, and take it one day at a time. Your child will fill your life with love!