Welcome to the MAPS Page!
MAPS stands for Microphthalmia/Anophthalmia Parent Support.
The MAPS family is an extremely diverse group, including people from many different countries, nationalities, faiths and religions. Many of our family stories, telling of the challenges and JOYS of raising our children, are written by our diverse members.
We welcome any and all to join us and share your family’s personal experience with microphthalmia/anophthalmia. You can also join us on Facebook.
Please feel free to print and share copies of any of our articles with anyone you think might be interested in learning more about MAPS.
Connections. Community. Understanding. Experience. Encouragement. Resources.
That is what MAPS is all about.
MAPS Mission Statement
MAPS will provide parent to parent support to others raising children with microphthalmia and/or anophthalmia. By sharing a wide variety of information, MAPS strives to empower parents and reduce the overwhelming feeling of isolation that is all too common when a diagnosis of microphthalmia or anophthalmia is confirmed.
MAPS Family Stories
- An Interview with John Pitzen
- A Letter to New Parents Living with Microphthalmia
- Q&A with Ocularist Walter T. Tillman
- Thoughts from a Kindergarten Teacher
- Thoughts from a Preschool Teacher
MAPS Information & Resource Articles
- IEP Strategies
- Learning Advocacy
- Ask the TVI
- Ask the TVI, Part 2
- Transitioning to Preschool
- Why We Love Music Therapy
- Making the Most of Your Most Restrictive Environment
- Teaching Your Visually Impaired Child Sign Language
- MAPS Kids at Space Camp!
- Mommy vs. Early Interventionists: Choosing to Take a Break from EI Therapies
- Sometimes You Just Have to Laugh
- MAPS Moms on Facebook
- American Society of Ocularists
- The Eyeless Trust (UK)
- Find an Ocularist
- Handling and Caring of the Ocular Prosthesis
- International Children’s Anophthalmia & Micropthalmia Network
- Micro & Anophthalmic Childrens Society (UK)
- The Official Parent’s Sourcebook for Anophthalmia
Personal Blogs and Websites
- Ava’s Blog
- Ella’s Blog
- Ivey’s Blog
- Kouper Shane’s Blog
- Patrick Henry Hughes Website
- Violet’s Journey with Hydrocephalus and Microphthalmia