MAPS MOMS Microphthalmia Anophthalmia Parent Support

MAPS stands for Microphthalmia/Anophthalmia Parent Support. The MAPS family is an extremely diverse group, including people from many different countries, nationalities, faiths and religions. MAPS welcomes any and all to join and share their family’s personal experience with microphthalmia/anophthalmia. You can find MAPS on Facebook.

laughing woman

Eye Conditions and Syndromes

Why I laughed when my daughter lost her eye

Gwen tells funny stories about raising her daughter Ivey who has bilateral anophthalmia. Gwen says it's important for us to learn to laugh at ourselves and our lives and teach...

Music Play

Why We Love Music Therapy for Our Blind Son

Jennie writes about how her son, Max, responds to music. Other therapies failed Max and often stressed him out, but Music Therapy has been very successful for him!

boy kissing his hand

Communication

Teaching Your Visually Impaired Child Sign Language

Jennie writes about how she taught her son, Max, to sign. Max is totally blind and does have a few verbal words, but using signs to augment his early communication...

stacking blocks

Education, Special Needs

Thoughts from a Preschool Teacher About Teaching a Blind Student

Heidi interviews her son's mainstream preschool teacher and asks her how she prepared to introduce a blind student to her classroom.

Transitioning your blind child to preschool

Education, Special Needs

Transitioning Your Blind Child to Preschool

Megan writes about her daughter, Ava, transitioning from Early Intervention to preschool. Ava attended the Western Pennsylvania School for Blind Children and has isolated bilateral anophthalmia.

mom and baby

Education

Is Early Intervention Always the Best Approach for a Blind Baby?

Anastasia writes about her daughter Lydia, who has anophthalmia. Lydia is still a baby and Anastasia has decided that Early Intervention services are not helping Lydia develop so she's opting...

baby feet with sand

Parenting, Support

When I Feel Alone as a Mom to a Child With Anophthalmia, I Remember This

Gwen writes about her baby daughter, Ivey, and the medical issues she faces. Gwen finds strength in her friends, family and even strangers who are drawn to her little girl.

Advocacy

Advocacy

Learning Advocacy and Self-Advocacy

Marianne Haas, a TVI, disability advocate and employment counselor, gives strategies and tips on how to advocate for your blind child.

moon

Math and Science

Reach for the Stars! Space Camp for Interested Visually Impaired Students

Space Camp for Interested Visually Impaired Students is a week long camp that takes place at the U.S. Space and Rocket Center in Huntsville, Alabama, coordinated by teachers for the...

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia, Part 2

TVI Lisa LaDue answers readers' questions about O&M and TVI services and whether or not a visually impaired student should automatically be sat at the front of the classroom.

A happy Ava in her preschool classroom at the Western PA School for Blind Children

IEPs

Making the Most of Your Most Restrictive Environment

Megan and her family devised a creative plan for their daughter Ava: begin her education in a private placement at a preschool for the blind, but group her with other...

Matteo using Braille

Education, Special Needs

Thoughts from a Kindergarten Teacher About Welcoming a Blind Student to Class

Michelle interviews her son's mainstream kindergarten teacher and asks her how she prepared her classroom for a blind student. She also asks her if she has any advice for other...