Eye Conditions and Syndromes

Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.

retinal implant

Eye Conditions and Syndromes, Health & Nutrition

Retinal Implants and Visual Cortex Plasticity

The Boston Retinal Implant Project unveiled a prototype prosthetic for people with retinitis pigmentosa (RP) and macular degeneration. This post links to a New York Times article which also discusses...

Martin Jones

Eye Conditions and Syndromes, Health & Nutrition

Tooth Implant Restores Sight

An innovation in lens surgery uses a patient’s tooth to hold an optical lens in place. Within 2 weeks of completing the entire procedure, Martin Jones of England was able...

People using brainport

Eye Conditions and Syndromes, Health & Nutrition

BrainPort Allows Blind Users to “See” Through Their Tongue

BrainPort Vision is a prosthetic device that uses electrical stimulation of the tongue to provide spatial information to users who are blind or who have vision limited to light perception....

GSFPB Logo

Eye Conditions and Syndromes

Glaucoma Service Foundation to Prevent Blindness

The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.

Deafblindness

Eye Conditions and Syndromes

A-Z to Deafblindness

This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.

NOAH logo

Eye Conditions and Syndromes

The National Organization for Albinism and Hypopigmentation (NOAH)

Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.

mom hugging baby

Eye Conditions and Syndromes, Visual Impairment

Raising a Blind Child with Albinism

Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.

CDBS logo

Eye Conditions and Syndromes

DeafBlind Fact Sheets

This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.

Tacey

Eye Conditions and Syndromes, Visual Impairment

Tacey’s Story: Surviving Retinoblastoma

Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.

ERG

Eye Conditions and Syndromes

What’s an ERG?

If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...

graduates

Eye Conditions and Syndromes, Visual Impairment

LCA and Education

How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.