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Eye Conditions And Syndromes 74

Learn about different types of eye conditions or syndromes that may affect young children.
 

American Nystagmus Network

The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.

637
10 years ago More
 

CHARGE Syndrome Foundation

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.

774
11 years ago More
 

The Glaucoma Foundation

The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.

761
11 years ago More
 

ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)

FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.

878
11 years ago More
 

Stargardts Disease

Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who also have Stargardts.

673
11 years ago More
 

The United Mitochondrial Disease Foundation

United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.

670
11 years ago More
 

Glaucoma Service Foundation to Prevent Blindness

The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.

695
12 years ago More
 

A-Z to Deafblindness

This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.

690
12 years ago More
 

The National Organization for Albinism and Hypopigmentation (NOAH)

Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.

640
13 years ago More
 

Raising a Blind Child with Albinism

Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.

1621
13 years ago More
 

DeafBlind Fact Sheets

This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.

753
14 years ago More
 

Tacey’s Story: Surviving Retinoblastoma

Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.

1418
14 years ago More
 

What’s an ERG?

If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in order to confirm the diagnosis. You're probably wondering what the test is like and whether or not you should do it now. We'll explain what the test was like for our family and hopefully this will help you make your own decision.

2824
14 years ago More
 

LCA and Education

How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.

1163
15 years ago More
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