Eye Conditions and Syndromes

Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.

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Eye Conditions and Syndromes

The National Organization for Albinism and Hypopigmentation (NOAH)

Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.

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Eye Conditions and Syndromes

Raising a Blind Child with Albinism

Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.

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Eye Conditions and Syndromes

DeafBlind Fact Sheets

This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.

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Eye Conditions and Syndromes

Tacey’s Story: Surviving Retinoblastoma

Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.

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Eye Conditions and Syndromes

What’s an ERG?

If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in...

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Eye Conditions and Syndromes

LCA and Education

How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.