Eye Conditions And Syndromes 74
American Nystagmus Network
The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.
CHARGE Syndrome Foundation
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.
The Glaucoma Foundation
The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.
ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.
Stargardts Disease
Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who also have Stargardts.
The United Mitochondrial Disease Foundation
United Mitochondrial Disease Foundation's mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
Glaucoma Service Foundation to Prevent Blindness
The Glaucoma Service Foundation’s mission is to preserve or enhance the health of all people with glaucoma.
A-Z to Deafblindness
This site offers help to deafblind people, those who provide specialized services for those who are deafblind and to make people more aware about deafblindness.
The National Organization for Albinism and Hypopigmentation (NOAH)
Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.
Raising a Blind Child with Albinism
Read Mary's story about the birth of her daughter and the struggles and pride she feels raising a child who is visually impaired.
DeafBlind Fact Sheets
This site provides a collection of downloadable and printable fact sheets on topics related to deaf-blindness.
Tacey’s Story: Surviving Retinoblastoma
Find out how Tacey, a nine-year-old blind cancer survivor, became the first ever Miss Tough Enough To Wear Pink Four States Rodeo Queen.
What’s an ERG?
If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in order to confirm the diagnosis. You're probably wondering what the test is like and whether or not you should do it now. We'll explain what the test was like for our family and hopefully this will help you make your own decision.
LCA and Education
How smart are patients with LCA? According to one study, they're definitely above the US national average. Here's a break down of the results.
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