Eye Conditions And Syndromes 70
Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.
MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.
Heidi writes about finding out that her son, AJ, is blind and how she reacted. She gives advice to other parents dealing with this.
Gwen writes bluntly about what it was like to find out that her baby was blind with anophthalmia and she gives advice to parents who find themselves in the same situation.
Frank Covich writes about his son, Skylar, who was diagnosed with LCA as a baby. Frank wants other parents to understand that the sky is the limit for kids with LCA.
The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).
aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when the baby is born most of the eye is underdeveloped to some degree.
An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.
ROPARD is the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and retinal disease.
The Macular Degeneration Foundation funds scientists searching for a cure for macular degeneration as well efforts to slow the progression of the disease.
NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide.
The American Nystagmus Network is a nonprofit organization established in 1999 to serve the needs and interests of those affected by Nystagmus.
The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.
The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.