Eye Conditions And Syndromes 74
Fred’s Story: Living with Familial Exudative Vitreoretinopathy (FEVR)
This is the first installment from UK-based parent Karen and how she felt when her son, Fred, was diagnosed with a rare condition F.E.V.R., folded retinas across the middle of both eyes.
Lil’ Victors for Kids who Patch
Lil' Victors carries clothing and other items that advise you to "keep calm and patch on," for when you want people to understand sight issues and why your baby is wearing a patch.
Anophthalmic Socket Expansion
Cecily Morrison writes about her son Ronan, who has anophthalmia. She explains what anophthalmia is and describes his treatment in detail. They are expanding his eye socket so that a prosthesis can be worn later. The expansion also helps his face grow evenly.
Optic Nerve Hypoplasia (ONH) Research at Children’s Hospital Los Angeles
Dr. Mark Borchert at Children's Hospital Los Angeles directs the world's largest study in optic nerve hypoplasia (ONH).
Three Retinoblastoma-Cancer-Fighting Superheroes!
Triplets Thomas, Mason and Luke were all diagnosed with retinoblastoma when only about 12 weeks old. They are now battling this rare form of cancer at SickKids Hospital in Toronto. Find out more about their story.
Hi, I’m Helen. I have Cerebral Palsy.
Is this speech, Lesley talks about learning to imagine an accepting community and encourages her listeners to empathize with others while also acknowledging their own deep feelings.
Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus
Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!
Cocoons Sunglasses for Kids with Photophobia
Cocoons makes polarized sunglasses that fit over prescription glasses and are great for kids with who are also photophobic or highly sensitive to sunlight.
Deaf-Blind Family Guide
The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness.
Beyond the Darkness: A Blog About Raising a Child with Retinopathy of Prematurity (ROP)
A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).
Visual Fields, Field Loss and Functional Vision Testing
The newest webcast from Perkins features Luisa Mayer, Ph.D., an internationally known specialist in visual field/functional vision testing.
A Team Approach to CVI in Schools
This downloadable PDF explains what CVI is in very easy to follow terms and develops a program that teachers and therapists can use to best teach students with CVI.
Optic Nerve Hypoplasia (ONH): A Mother’s Perspective
LeAndra Lee writes about her daughter, Abigail, who is diagnosed with Optic Nerve Hypopalsia and Septo Optic Dysplasia. LeAndra explains what ONH is and how it affects Abigail.
Ask the TVI about Anophthalmia and Microphthalmia, Part 2
TVI Lisa LaDue answers readers' questions about O&M and TVI services and whether or not a visually impaired student should automatically be sat at the front of the classroom.
Little Bear Sees: Tips & Ideas for Kids with CVI
From the creators of the first app for kids with CVI, Tap-n-See Zoo, comes the Little Bear Sees blog! Here you'll find all sorts of fun ideas for activities and toys for children and babies with CVI, from lights and switches to (my favorite) a trip to the aquarium!
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