Eye Conditions And Syndromes 71
Optic Nerve Hypoplasia (ONH) Research at Children’s Hospital Los Angeles
Dr. Mark Borchert at Children's Hospital Los Angeles directs the world's largest study in optic nerve hypoplasia (ONH).
Three Retinoblastoma-Cancer-Fighting Superheroes!
Triplets Thomas, Mason and Luke were all diagnosed with retinoblastoma when only about 12 weeks old. They are now battling this rare form of cancer at SickKids Hospital in Toronto. Find out more about their story.
Hi, I’m Helen. I have Cerebral Palsy.
Is this speech, Lesley talks about learning to imagine an accepting community and encourages her listeners to empathize with others while also acknowledging their own deep feelings.
Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus
Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!
Cocoons Sunglasses for Kids with Photophobia
Cocoons makes polarized sunglasses that fit over prescription glasses and are great for kids with who are also photophobic or highly sensitive to sunlight.
Deaf-Blind Family Guide
The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness.
Beyond the Darkness: A Blog About Raising a Child with Retinopathy of Prematurity (ROP)
A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).
Visual Fields, Field Loss and Functional Vision Testing
The newest webcast from Perkins features Luisa Mayer, Ph.D., an internationally known specialist in visual field/functional vision testing.
A Team Approach to CVI in Schools
This downloadable PDF explains what CVI is in very easy to follow terms and develops a program that teachers and therapists can use to best teach students with CVI.
Optic Nerve Hypoplasia (ONH): A Mother’s Perspective
LeAndra Lee writes about her daughter, Abigail, who is diagnosed with Optic Nerve Hypopalsia and Septo Optic Dysplasia. LeAndra explains what ONH is and how it affects Abigail.
Ask the TVI about Anophthalmia and Microphthalmia, Part 2
TVI Lisa LaDue answers readers' questions about O&M and TVI services and whether or not a visually impaired student should automatically be sat at the front of the classroom.
Little Bear Sees: Tips & Ideas for Kids with CVI
From the creators of the first app for kids with CVI, Tap-n-See Zoo, comes the Little Bear Sees blog! Here you'll find all sorts of fun ideas for activities and toys for children and babies with CVI, from lights and switches to (my favorite) a trip to the aquarium!
Mrs. America Raises Awareness About Retinitis Pigmentosa
Watch this video with Mrs America on Fox News. She talks about RP and LCA and explains how we can help support exciting new research that may cure these diseases.
Q&A with Ocularist Walter T. Tillman
Walter Tillman is an ocularist in Ocularist Pittsburgh. He talks about how he assesses children with anophthalmia/microphthalmia, how to choose conformers or prosthetics, and possible surgical options.
A Letter to New Parents Living with Microphthalmia
Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low vision and that they should never give up on their children.
