Eye Conditions and Syndromes

Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.

a flower in focus

Eye Conditions and Syndromes

Tips and Tricks to Adapting to Everyday Situations When You Have Low Vision or Congenital Nystagmus

Advice from an adult with low vision and congenital nystagmus about how to adapt to everyday situations and how to ask for help when you need it!

how gene therapy works

Eye Conditions and Syndromes

Gene Therapy Treatment for Choroideremia

Researchers at the Nuffield Laboratory of Ophthalmology at the University of Oxford in the U.K. are treating Choroideremia (CHM) with gene therapy. This treatment can be used to treat many...

eSight Eyewear

Eye Conditions and Syndromes

eSight Eyewear

eSight Eyewear is a new low vision assistive device that you wear. It is custom fit, runs on batteries and can bring clearer vision to near, far and mid-range tasks.

Mirielle in her sunglasses

Eye Conditions and Syndromes

Cocoons Sunglasses for Kids with Photophobia

Cocoons makes polarized sunglasses that fit over prescription glasses and are great for kids with who are also photophobic or highly sensitive to sunlight.

mouse

Eye Conditions and Syndromes

Preventing the Development of Deafness in Mice with Usher Syndrome

Researchers at Rosalind Franklin University of Medicine and Science have found a way to use a single dose of a small, synthetic RNA-like molecule, called an antisense oligonucleotide (ASO), to...

Argus II

Eye Conditions and Syndromes

FDA Approves Artificial Retina

The Argus II Retinal Prosthesis System is the first artificial retina (also called a bionic eye or retinal microchip) to be approved by the FDA in the United States.

Little boy in ball pit

Eye Conditions and Syndromes

Deaf-Blind Family Guide

The Oregon Deaf-Blind Project has created a family guide for parents of children diagnosed with deaf-blindness.

Will Patch for Cake shirt

Eye Conditions and Syndromes

Eye Power Kid’s Wear

Eye Power Kid's Wear creates adorable print T-shirts specially designed for kids who wear glasses or a patch!

Beyond the Darkness

Eye Conditions and Syndromes

Beyond the Darkness: A Blog About Raising a Child with Retinopathy of Prematurity (ROP)

A mother writes candidly about the birth and life of her son, Gabriel, who has Retinopathy of Prematurity (ROP).

visual pathway

Eye Conditions and Syndromes

Visual Fields, Field Loss and Functional Vision Testing

The newest webcast from Perkins features Luisa Mayer, Ph.D., an internationally known specialist in visual field/functional vision testing.

A Team Approach to CVI in Schools

Eye Conditions and Syndromes

A Team Approach to CVI in Schools

This downloadable PDF explains what CVI is in very easy to follow terms and develops a program that teachers and therapists can use to best teach students with CVI.

Sketch of a bionic eye or retinal microchip

Eye Conditions and Syndromes

Bionic Vision Australia Working on Bionic Eye Implants

Bionic Vision Australia (BVA) announces the successful implantation of a bionic eye. BVA attached the device, which contains 24 electrodes that stimulate the retina's nerve cells, to a retina.

rat

Eye Conditions and Syndromes

Retinal Prosthetic Creates “Normal Vision” in Blind Mice

A new study restores normal vision in mice with diseased retinas using a new type of retinal prosthetic which relies on the use of the retina's code that communicates with...

Abby smiling

Eye Conditions and Syndromes

Optic Nerve Hypoplasia (ONH): A Mother’s Perspective

LeAndra Lee writes about her daughter, Abigail, who is diagnosed with Optic Nerve Hypopalsia and Septo Optic Dysplasia. LeAndra explains what ONH is and how it affects Abigail.

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia, Part 2

TVI Lisa LaDue answers readers' questions about O&M and TVI services and whether or not a visually impaired student should automatically be sat at the front of the classroom.

The Forever Fix: Gene Therapy and the Boy Who Saved It

Eye Conditions and Syndromes

The Forever Fix: Gene Therapy and the Boy Who Saved It

The Forever Fix is a new book about Corey Haas, a little boy born blind with LCA. The book recounts his experiences with genetic therapy and how the therapy was...

second sight

Eye Conditions and Syndromes

Artificial Retina Approved for Sale in Europe

Second Sight announces that their artificial retina (also known as a retinal microchip), the Argus II, is now available for public purchase in Europe.

looking at jellyfish

Eye Conditions and Syndromes

Little Bear Sees: Tips & Ideas for Kids with CVI

From the creators of the first app for kids with CVI, Tap-n-See Zoo, comes the Little Bear Sees blog! Here you'll find all sorts of fun ideas for activities and...

Mrs. Amercia raising awareness about RP

Eye Conditions and Syndromes

Mrs. America Raises Awareness About Retinitis Pigmentosa

Watch this video with Mrs America on Fox News. She talks about RP and LCA and explains how we can help support exciting new research that may cure these diseases.

Q & A

Eye Conditions and Syndromes

Q&A with Ocularist Walter T. Tillman

Walter Tillman is an ocularist in Ocularist Pittsburgh. He talks about how he assesses children with anophthalmia/microphthalmia, how to choose conformers or prosthetics, and possible surgical options.

Jacalyn

Eye Conditions and Syndromes

A Letter to New Parents Living with Microphthalmia

Jacalyn Paulding writes about growing up with microphthalmia. Living a full life as a smart and successful young woman, Jacalyn wants parents to understand what it's like to have low...

Q & A

Eye Conditions and Syndromes

Ask the TVI about Anophthalmia and Microphthalmia

TVI Lisa LaDue answers readers' questions about protective eye glasses, testing blind children with assessment programs, and activities you can do at home to boost skills.

Ella with her first pair of blue prostheic eyes

Eye Conditions and Syndromes

Ella’s Story: Raising a Child with Bilateral Anophthalmia

Jill writes about finding out that her daughter, Ella, is blind and how she responded. She explains how her faith in God helped her cope.

John Pitzen holding Ella

Eye Conditions and Syndromes

An Interview with John Pitzen about Bilateral Anophthalmia

MAPS interviews John Pitzen, a 53 year old man born with bilateral anophthalmia. MAPS asks John what he does for a living and what he does for fun.