Eye Conditions And Syndromes 70
My child was just diagnosed with a retinal disorder, are there any treatments? Is there a cure?
Blindness due to a retinal disorder is no longer completely untreatable. There are devices that can restore or augment sight as well as some serious movement in the world of genetic therapy and stem cell research.
Genetic Testing for Retinal Diseases: Your Questions Answered!
Do you have questions about the genetics behind an inherited retinal disorder? How do you do genetic testing... and what do you do with the test results?
A Huge Leap Forward for LCA Gene Therapy
Spark Therapeutics announces the success of their phase 3 clinical trials for LCA gene therapy and their plan to seek FDA approval in 2016.
Genetic Mutation May Cause Some forms of Anophthalmia/ Microphthalmia
Researchers have found a genetic mutation that explains why some children are born without eyes (anophthalmia) or with small eyes (microphthalmia).
CVI on APH: The Conversation Continues
A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).
New Gene for LCA Discovered, PNPLA6
The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.
Creating a new Scleral Shell at the Ocularist
This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!
Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa
Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in her life.
A Board Book Showing Kids Wearing Glasses!
This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.
11 Super Fun Patching Resources to Make Patching Easy!
Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching easy for you and your child!
CVI Teacher: Sharing Ideas About Cortical Visual Impairment
This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.
New Treatment for Leber’s Congenital Amaurosis (LCA)
Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!
Learn About the Eye
We'll show you all you need to know about the eye & how it works in simple language. You'll learn the basics about the eye so that you can have a better understanding about your blind child's eye condition.
Lil’ Victors for Kids who Patch
Lil' Victors carries clothing and other items that advise you to "keep calm and patch on," for when you want people to understand sight issues and why your baby is wearing a patch.
Optic Nerve Hypoplasia (ONH) Research at Children’s Hospital Los Angeles
Dr. Mark Borchert at Children's Hospital Los Angeles directs the world's largest study in optic nerve hypoplasia (ONH).