Eye Conditions and Syndromes

Learn about different types of eye conditions or syndromes that may affect young children, such as Cortical Visual Impairment (CVI), Leber's Congenital Amaurosis (LCA), Anophthalmia and Microphthalmia, Optic Nerve Hypoplasia (ONH) and Albinism.

retina scan

Eye Conditions and Syndromes

Optogenetics: A New Way to Restore Sight

Optogenetics looks at restoring sight to patients with retinal damage in a whole new way by focusing on transforming the function of ganglion cells.

Shelby in her WonderBaby T-Shirt

Eye Conditions and Syndromes, Special Needs

Why I Loved Attending the CHARGE Conference

I was nervous about attending my first CHARGE conference, but I am so happy that I did! It was wonderful! You should attend a family conference about your child's diagnosis...


Eye Conditions and Syndromes

Genetic Mutation May Cause Some forms of Anophthalmia/ Microphthalmia

Researchers have found a genetic mutation that explains why some children are born without eyes (anophthalmia) or with small eyes (microphthalmia).

Visual Code for treating Blindness

Eye Conditions and Syndromes

The Visual Code That May Treat Blindness

New treatment allows visual information to bypass damaged retina cells and successfully reach the brain where it can be processed.

A little girl with her hand on a light board with colorful shapes

Eye Conditions and Syndromes

CVI on APH: The Conversation Continues

A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).

DNA double helix

Eye Conditions and Syndromes

New Gene for LCA Discovered, PNPLA6

The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.

paper heart on background of pebbles

Eye Conditions and Syndromes

Creating a new Scleral Shell at the Ocularist

This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!

Eye Conditions and Syndromes

Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa

Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in...

closeup of eye

Eye Conditions and Syndromes

More News on Stem Cells and Blindness

Scientists in the UK have discovered a cache of stem cells in the eye that could lead to reversing blindness for those with age-related macular degeneration and retinitis pigmentosa. It's...

Genzyme supporting gene therapy research for childhood blindness

Eye Conditions and Syndromes

Gene therapy research for childhood blindness gets a boost from Genzyme

LCA-1 research is getting a boost from Genzyme with a $900,000 grant to pursue gene therapy. Dr. Shannon Boye has had success with animals in the lab and is looking...

Brown circle of retinal tissue from stem cells

Eye Conditions and Syndromes

First Human Trial for Macular Degeneration

The first human trials in using home-grown stem cells to treat age-related macular degeneration took place recently in Japan. This could be a breakthrough for other therapies involving stem cells...

Orange stem cell

Eye Conditions and Syndromes

Next Step for Macular Degeneration: Human Trials

A Japanese ophthalmologist has invented a way to use adult stem cells to replace the base layer of the retina and improve the sight of those with age-related macular degeneration.

Front cover of board book titled

Eye Conditions and Syndromes

A Board Book Showing Kids Wearing Glasses

This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.

Will Patch for Cake t-shirt

Eye Conditions and Syndromes

11 Super Fun Patching Resources to Make Patching Easy!

Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching...

CVI Teacher

Eye Conditions and Syndromes

CVI Teacher: Sharing Ideas About Cortical Visual Impairment

This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.

Mosaic of iris of the eye made up of little pictures

Eye Conditions and Syndromes

My Retina Tracker: Building a Medical Database to Find Cures

My Retina Tracker is a resource from the Foundation Fighting Blindness that lets individuals manage their information around their retina disease, while researchers can curate the information to further treatment...

multicolored pills

Eye Conditions and Syndromes

New Treatment for Leber’s Congenital Amaurosis (LCA)

Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!

Cornea shown enlarged

Eye Conditions and Syndromes

A Breakthrough in Growing Corneas

Researchers have figured out how to use adult stem cells to grow corneas in the lab. These can be used to treat a host of eye illnesses and injuries.

Contact Lens illuminated from behind on black

Eye Conditions and Syndromes

New Way to Deliver Glaucoma Medicine

Researchers have found a way to deliver glaucoma medicine via contact lenses, making it easier for users to continue treatment for their disease.

eye anatomy

Eye Conditions and Syndromes

Learn About the Eye

We'll show you all you need to know about the eye & how it works in simple language. You'll learn the basics about the eye so that you can have...

2 kids with patches

Eye Conditions and Syndromes

Lil’ Victors for Kids who Patch

Lil' Victors carries clothing and other items that advise you to "keep calm and patch on," for when you want people to understand sight issues and why your baby is...

Children's Hospital Los Angeles logo

Eye Conditions and Syndromes

Optic Nerve Hypoplasia (ONH) Research at Children’s Hospital Los Angeles

Dr. Mark Borchert at Children's Hospital Los Angeles directs the world's largest study in optic nerve hypoplasia (ONH).

Mason, Thomas & Luke (not necessarily in that order)

Eye Conditions and Syndromes

Three Retinoblastoma-Cancer-Fighting Superheroes!

Triplets Thomas, Mason and Luke were all diagnosed with retinoblastoma when only about 12 weeks old. They are now battling this rare form of cancer at SickKids Hospital in Toronto....

Bear's shirt showing

Eye Conditions and Syndromes

Hi, I’m Helen. I have Cerebral Palsy.

Is this speech, Lesley talks about learning to imagine an accepting community and encourages her listeners to empathize with others while also acknowledging their own deep feelings.