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Eye Conditions And Syndromes 74

Learn about different types of eye conditions or syndromes that may affect young children.
 

New Technology Could Cure Retinitis Pigmentosa (RP)

Gene-editing technology could personalize how we treat eye diseases.

4344
5 years ago More
 

My child was just diagnosed with a retinal disorder, are there any treatments? Is there a cure?

Blindness due to a retinal disorder is no longer completely untreatable. There are devices that can restore or augment sight as well as some serious movement in the world of genetic therapy and stem cell research.

1970
5 years ago More
 

Genetic Testing for Retinal Diseases: Your Questions Answered!

Do you have questions about the genetics behind an inherited retinal disorder? How do you do genetic testing... and what do you do with the test results?

1756
5 years ago More
 

A Huge Leap Forward for LCA Gene Therapy

Spark Therapeutics announces the success of their phase 3 clinical trials for LCA gene therapy and their plan to seek FDA approval in 2016.

1464
5 years ago More
 

Genetic Mutation May Cause Some forms of Anophthalmia/ Microphthalmia

Researchers have found a genetic mutation that explains why some children are born without eyes (anophthalmia) or with small eyes (microphthalmia).

1643
5 years ago More
 

CVI on APH: The Conversation Continues

A resource for research articles, books, websites, blogs, strategies and support for parents of children diagnosed with Cortical Visual Impairment (CVI).

1555
6 years ago More
 

New Gene for LCA Discovered, PNPLA6

The discovery of a new genetic mutation on an already known gene could lead to treatments of genetic blindness in children with LCA.

1004
6 years ago More
 

Evelyn’s Adventures so Far Living with Familial Exudative Vitreoretinopathy (FEVR)

This is a lovely story about Evelyn and her journey so far through life. Diagnosed with FEVR, Evelyn has very poor sight, but that hasn't stopped her!

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6 years ago More
 

Creating a new Scleral Shell at the Ocularist

This cool video shows how easy it is to create a new scleral shell and how easy it is to be the patient, too!

1306
6 years ago More
 

Now I See You: Nicole Kear’ Story About Being Diagnosed with Retinitis Pigmentosa

Author Nicole Kear describes her reaction to the diagnosis of losing her vision to retinitis pigmentosa that she received in college, and the choices it caused her to make in her life.

1008
6 years ago More
 

A Board Book Showing Kids Wearing Glasses!

This board book, titled "Glasses," features very young children wearing real glasses. A great first picture book for kids who wear glasses and want to see other kids like themselves.

788
6 years ago More
 

11 Super Fun Patching Resources to Make Patching Easy!

Patching can be a chore and a challenge, but if you keep it light and fun, you'll get through it. Here are our favorite patching resources that will make patching easy for you and your child!

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6 years ago More
 

CVI Teacher: Sharing Ideas About Cortical Visual Impairment

This blog on educational information around Cortical Visual Impairment is written by a Teacher of the Visually Impaired with a specialty in CVI.

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6 years ago More
 

New Treatment for Leber’s Congenital Amaurosis (LCA)

Researchers are developing an oral medicine that improves visual ability in patients with LCA from the RPE65 or LRAT genes. This is very exciting news!

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6 years ago More
 

Learn About the Eye

We'll show you all you need to know about the eye & how it works in simple language. You'll learn the basics about the eye so that you can have a better understanding about your blind child's eye condition.

1891
6 years ago More
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