Originally from Hawaii, Amber and her family moved to Massachusetts to be closer to Boston Children’s Hospital where her son, Ivan, now receives medical care.
She has a Master’s degree in English from Tufts University and spends most of her “free time” writing about being a parent of a disabled child on WonderBaby.org. But really most of her time is spent caring for and playing with her son.
The American Society of Ocularists is an international, non-profit, professional and educational organization founded in 1957 by professionals specializing in the fabricating and fitting of custom-made ocular prosthetics (artificial eyes).
America's largest and most advanced producer of braille and tactile resources transcribes traditional texts, graphics, legal documents, users manuals and more. Download their PDF catalog for their current titles.
aniridia is caused when the gene responiable for eye development - the PAX6 gene - does not function correctly. This causes the eye to stop developing too early and when...
The American Council of Blind Students (ACBS) is the student affiliate of the American Council of the Blind, the nation's leading consumer and advocacy organization of people who are blind...
My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...
Founded in 1983, the National Organization of Parents of Blind Children is a national membership organization of parents and friends of blind children reaching out to each other to give...
POSITIVE EXPOSURE, founded in 1997 by former fashion photographer Rick Guidotti and Diane McLean, is a highly innovative arts organization working with individuals living with genetic difference.
The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...
NOAH provides parents and educators of school aged children with albinism with resource information that will aid them in formulating their child’s IEP.
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial...
