Amber Bobnar

Originally from Hawaii, Amber and her family moved to Massachusetts to be closer to Boston Children’s Hospital where her son, Ivan, now receives medical care.


She has a Master’s degree in English from Tufts University and spends most of her “free time” writing about being a parent of a disabled child on But really most of her time is spent caring for and playing with her son.

Using the plate-mate

Feeding and Eating

My Plate-Mate Adaptive Feeding Aid

My Plate-Mate is a children’s teaching tool for eating. It helps a toddler learn how to successfully eat with a utensil and plate while minimizing the mess that comes with...

National Organization of Parents of Blind Children

Support, Visual Impairment

National Organization of Parents of Blind Children (NOPBC)

Founded in 1983, the National Organization of Parents of Blind Children is a national membership organization of parents and friends of blind children reaching out to each other to give...

eye and light

Eye Conditions and Syndromes

Achromatopisia Network

An information network for individuals and families who are affected by achromatopsia and for professionals interested in achromatopsia.

Special Needs

Positive Exposure: Photography & Uplifting Stories

POSITIVE EXPOSURE, founded in 1997 by former fashion photographer Rick Guidotti and Diane McLean, is a highly innovative arts organization working with individuals living with genetic difference.

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Eye Conditions and Syndromes

Stickler Syndrome

The mission of Stickler Involved People is to educate and give support to people affected by Stickler Syndrome. They have a shared network and are in the process of starting...

CARE project by NOAH


IEP Resources for Children with Albinism

NOAH provides parents and educators of school aged children with albinism with resource information that will aid them in formulating their child’s IEP.

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Joubert Syndrome Foundation

The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial...

Future Reflections

Support, Visual Impairment

Future Reflections: magazine for parents and teachers of blind children

Future Reflections is a magazine for parents and teachers of blind children. It is published quarterly by the American Action Fund for Blind Children and Adults in partnership with the...

little girl wearing glasses

Support, Visual Impairment

Junior Blind of America

Junior Blind's mission is helping children and adults who are blind, visually impaired or multi-disabled achieve independence.

Lighthouse Guild logo

Support, Visual Impairment

Lighthouse Guild

Lighthouse International is dedicated to fighting vision loss through prevention, treatment and empowerment.

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Braille and Literacy

ReadBooks! Braille Literacy Program

ReadBooks! is a national children's braille literacy program encouraging families with blind children to read print/braille books together.

learning ally logo

Braille and Literacy

Learning Ally (Recording for the Blind)

Formerly known as Recording for the Blind and Dyslexic, Learning Ally produces audio-format textbooks for students of all ages.