Amber Bobnar

Originally from Hawaii, Amber and her family moved to Massachusetts to be closer to Boston Children’s Hospital where her son, Ivan, now receives medical care.

 

She has a Master’s degree in English from Tufts University and spends most of her “free time” writing about being a parent of a disabled child on WonderBaby.org. But really most of her time is spent caring for and playing with her son.

CSF Logo

Eye Conditions and Syndromes

CHARGE Syndrome Foundation

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families.

Schools for the Blind

Clovernook Center for Blind and Visually Impaired

Clovernook provides comprehensive program services including training and support for independent living, orientation and mobility instruction, vocational training, job placement, counseling, recreation, and youth services.

Support, Visual Impairment

Foundation Fighting Blindness

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by blindness.

TGF logo

Eye Conditions and Syndromes

The Glaucoma Foundation

The mission of The Glaucoma Foundation (TGF) is to fund groundbreaking research and to educate the public about the disease and the importance of early detection to prevent blindness.

Kester Braille

Braille and Literacy

Kester Braille Curriculum Program

The purpose of the Kester Braille Reading Program is to fill the need for non-visual materials to teach specific skills to beginning readers in the same sequence these skills are...

NYSSB banner

Schools for the Blind

New York State School for the Blind

New York State School for the Blind's mission is to provide a learning environment that encourages blind children to reach their full potential.

ONH/SOD Logo

Eye Conditions and Syndromes

ONH/SOD Family Focus (optic nerve hypoplasia/septo optic dysplasia)

FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.

Parenting Special Needs cover

Support

Parenting Special Needs Online Magazine

The Parenting Special Needs Online Magazine explores the changing face of parenting a special needs child. Continually seeking change for the better with new and helpful information that is “simplified”...

screenshot from Hands and Voices

IEPs

Pop-Up IEP for Parents/Advocates

Check out this website to read some "conversation stoppers" that parents may hear at an IEP meeting and ideas for possible responses.

rnib logo

Visual Impairment

Royal National Institute for the Blind (RNIB)

In the United Kingdom, the Royal National Institute of Blind People (RNIB) is the leading information and support organization for individuals who are blind or visually impaired.

Songs for Teaching logo

Music Play

Songs for Teaching: Using Music to Promote Learning

A collection of songs categorized by subject so you can find the perfect song to fit any curriculum or lesson plan - or just to emphasize an idea at home.

Stargadts banner

Eye Conditions and Syndromes

Stargardts Disease

Stargardts Net is the home for anyone and everyone who has an interest in Stargardts Disease. Via their website they tell their story in the hope of helping others who...