Here's something I've learned in the last 10 years: Raising a special needs child is hard, but raising a special needs child who is medically complex is much harder.
Navigating life's path as a parent of a child diagnosed with a rare disease can be hard at times. It's okay to look to others for help.
Holly Bonner writes about being a mother to two beautiful little girls. What makes her blog different than most mommy blogs is that Holly is blind. She blogs about life and adaptations she's made to make things easier.
The Caregiver's Notebook gives those who care for someone with multiple needs a handy place to organize information.
Nick writes about learning that his baby daughter, Mia, is blind with LCA. Most blog posts are written by mothers, but here Nick writes from the father's point of view.
When you see my daughter, please ask questions! I believe it is my role to educate others about being deafblind and how this shapes (but doesn't define) my child.
How do you encourage sisterly (or brotherly) love? Nicole shares some tips for encouraging your "typical" kids to play and interact with their special needs sibling.
Are you good at juggling multiple projects? Do you adapt well to change? You may be a special needs parent!
How can you explain blindness to your child when you are sighted? And how can you explain sight to a child who has never seen?
How can your baby be perfect if he can't see? Obviously there is something really wrong with his eyes, and isn't perfect the absence of wrong?
I recently asked this question to a group of special needs moms: "If you had a magic wand that could 'cure' your child's disability, would you use it? Why or why not?" What they said might surprise you!
Janyia is a little girl with several medical conditions: Arthrogryposis, Cerebral Palsy, Chronic lung disease and Hydrocephalus. This is her story.
Pinterest is one of the best ways for a parent of a child with special needs to find what they need on the internet. Here are my favorite Pinterest boards for parents of kids who are blind or visually impaired.
A list of books (and videos) that parents of blind & visually impaired children should read (and watch). We've listed only the best of the best here so you can read the important books and then get on with the important task of raising your blind child.
My son Jaxon was born with bilateral corneal clouding. We have been through a lot with this little man and I wrote a blog post about some of the things that have helped me along the way.