Eye Conditions And Syndromes 74
FOCUS Families provides Information, Education and Support to those affected by Optic Nerve Hypoplasia (ONH) & Septo Optic Dysplasia (SOD) world wide.
Families with albinism come together through NOAH, The National Organization for Albinism and Hypopigmentation.
If you are the parent of a baby or young child who has been tentatively diagnosed with LCA, your doctors probably suggested that your child have an electroretinogram (ERG) in order to confirm the diagnosis. You're probably wondering what the test is like and whether or not you should do it now. We'll explain what the test was like for our family and hopefully this will help you make your own decision.