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All Parenting Posts
Becoming a parent to any child is magical in its own right, but here is a list of observations about things only a mother of a child who is visually...
25 Things Only a Mother of a Child who is Visually Impaired Would Understand
When Ivan was born, we were in the NICU for a week. His breathing was irregular and he aspirated when feeding. He was run through a battery of tests...
What I Wish Someone Had Told Me When My Child was First Diagnosed with a Disability
Braille Bee Spelling App
When we first discovered that our baby was blind, we began reading, reading, reading. Here we'll sift through the good and the bad and recommend only...
What to Read When you Learn your Baby is Blind
I knew from six weeks of age that something wasn't quite right with my son. The doctors thought I was being paranoid, but a mother knows her child...
Surviving the First 18 Months After Learning Your Child is Blind
Training for Professionals Working with Kids with Visual Impairment
When you're raising a child with a disability you can feel alone. There's so much you need to do and learn and I know you don't want to add one more...
Finding Online Support Groups for Parents of Blind Kids
Until not very long ago, you and your new baby were two souls sharing one body; his tiny immature organs were getting major assistance from your...
Breastfeeding & Bonding with Your Visually Impaired Infant
One in a Million Baby Podcast
Your child is born with a very rare condition, he or she is labeled "special needs" and you, after recovering from grief and anger at the world...
Is Early Intervention Always the Best Approach for a Blind Baby?
When your baby is diagnosed with a visual impairment you may feel lost at first. Like many parents, you've probably never known anyone who was blind...
My baby is blind... What do I do?
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August is a difficult month. School is out, routines are thrown out the window and it's hot! Our neurologist is on vacation so we're having to talk...
8 things I am so done with as a special needs mom
Daddy Chris Clark writes about his daughter Ellie and the impact she has made to his life. He breaks his story into three short sections – Pre-...
My Experience Being the Father of a Visually Impaired Child
So it’s been over 6 months since I updated my blog post from last year and I have finally found some time to sit down and give you all an update on...
The Day I Wished Our Lives Could Be Normal: Confessions of a Special Needs Dad
The empowering guide that taught parents how to promote the development of young children with visual and multiple impairments has been updated and...
Reach Out and Teach: Helping Your Child Who is Visually Impaired Learn and Grow
Have you ever had a full-body cringe moment? My life is filled with them. I remember when I was five and a half months pregnant with my twins and...
What I Will Say the Next Time Someone Asks an Insensitive Question About My Deafblind...
This past week Ivey took her first beach trip. In fact, it was her first vacation and one that she had very much earned. As always, she astonished me...
When I Feel Alone as a Mom to a Child With Anophthalmia, I Remember This
The Disabled Parenting Project (DPP) is an online space for sharing experiences, advice, and conversations among disabled parents as well as those...
Disabled Parenting Project
To celebrate World Poetry Day, Charlotte has written this beautiful poem for her daughter Scarlett who is blind.
A Poem for My Blind Daughter
People are fascinated by the way in which Scarlett conducts herself, she seems to live among the fairies most of the time and is very happy in her...
Does my blind child live in her own Wonderland?
I recently wrote about finally (finally!) taking a real vacation... without kids! Leaving the kids with my parents of course brought on some anxiety...
"What if I die?" Creating a care plan to combat the secret fear of every...
Here's something I've learned in the last 10 years: Raising a special needs child is hard, but raising a special needs child who is medically complex...
What I wish people understood about raising a medically complex child
Before I had my daughter Madilyn, I was not truly aware that rare diseases existed around me nor what it truly meant to live with a rare disease. The...
Parenting a Child with a Rare Disease
Holly Bonner writes about being a mother to two beautiful little girls. What makes her blog different than most mommy blogs is that Holly is blind....
WonderBaby.org is a community site, and this means that we love to hear from YOU! WonderBaby readers are welcome to share their favorite online...
20 Most Popular Shared Resources for Parents of Blind Children
A few weeks ago at OT Shelby was on the swing and her therapist prompted her to reach out and grasp the rope. Shelby didn't—no surprise there. I was...
Something Happened While I was Waiting for My Daughter to Tell Me She Loves Me
Being a caregiver for someone, anyone, is a lot of work. Even when you love them and want to care for them, the task of keeping track of medical...
The Caregiver's Notebook: An Organizational Tool and Support to Help You Care for...
I have been reading a few stories and articles online since finding out my daughter, Mia, has Leber's Congenital Amaurosis (LCA) and all of these...
Raising a Blind Baby: A Father's Perspective
Our culture is one of show and tell. Kylie Jenner did what? To what part of her body? We look. I look. A paleo blogger tweets about the breakfast she...
Why it's OK to Ask Me About My Special Needs Child
I am often asked 'what is the best piece of advice I would offer to the parent of a newly diagnosed child'. In this post I offer a collection of '...
Best piece of advice for a parent who is raising a child with a visual impairment
I have three girls. Elyse and Tasmin are twins and almost three years old! Their sister, Shelby, is almost two and diagnosed with CHARGE Syndrome. As...
Encouraging Sisterly Love
I have my performance review coming up for work and I couldn't help but chuckle while filling out the self evaluation portion. Good at juggling...
Why You Should Hire a Special Needs Parent
"Hello, I have a 7 years old daughter with Optic Nerve Hypoplasia (ONH). She is blind and last week she asked me for the first time, what does it...
What Does it Mean to be Blind?
Ivan was born as an emergency c-section, so there wasn't much time for bonding right away. I was having complications due to preeclampsia and he was...
The Day I Redefined Perfection as the Mother of a Blind Child
Are there any children's books you could suggest I can read to my blind son that just emphasizes how special and unique he is?
Are there any children's books you could suggest I can read to my blind son that...
I often look at my son and think one word: PERFECT. He is perfect. I feel it in the core of my being and I love every aspect of his personality. I...
If you had a magic wand that could "cure" your child's disability, would...
My grandson has been diagnosed with septo optic hypoplasia and an absent septum pellucidum. We have been told that he is blind in both eyes. He...
How can I best care for my blind newborn?
In this blog post, I examine the world's perspective about Scarlett by comparing her to the intrigue created via abstract art.
My Blind Daughter: The Beautiful Piece of Abstract Art!
Hello! My name is Janyia. I was born March 12, 2013. I would like to share my journey so far with you all. My battle started before I was born. Here...
Janyia's Story: I am Here and Doing Amazing
Any suggestions for strollers for a 2 year old with infantile spasms?
Any suggestions for strollers for a 2 year old with infantile spasms?
Charlotte looks at special needs parenting from a new perspective; the perspective of a parent who is also raising a typically developing child: "...
The Invisible Sibling: Raising a Special Needs Child & a Typically Developing Child