As the mother of a special needs child I need friends and support. Where is the best place for me to find a support network? Surprise! That's what social media is for.
If you could go back in time to when your child was first diagnosed with a disability, what would you tell yourself? What advice would you give?
I don't want my friends or family to feel sorry for me or for my child. I'm not saying this in a tough "I can handle this so you don't have to worry" kind of way or even in a dismissive "we don't need your pity" kind of way.
A lot of people write about what they've learned as a special needs parent, but there's one thing I still haven't learned yet.
What You Might Not Know About Destiny the Whale Shark in Finding Dory (HINT: Maybe she needs a white cane?)
There's been a lot of talk about how Dory's disability is represented in Finding Dory, but not so much buzz about the visually impaired whale shark character, Destiny. Let's change that!
Learning your baby is blind is hard... but you will move on! Janine says, "Life was continuing and I started to realize how strong we were becoming. The tears were drying up and a new attitude was forming. I'd turned a corner; I'd accepted his condition and was going to embrace this new life."
Gwen writes about her baby daughter, Ivey, and the medical issues she faces. Gwen finds strength in her friends, family and even strangers who are drawn to her little girl.
If you are the primary caregiver of a special needs child, you probably worry about what would happen if you were gone.